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gst: GST exemption on medicines for rare diseases is unlikely to provide any relief to those in need: Health activists

The recent GST exemption on medicines for rare diseases in India is unlikely to help many patients as the drugs are still too expensive, say health activists. Activists say they had hoped for a tax exemption for medicines already approved by India s drug regulator and available locally. With patient requests for exemption for Indian medicines, the Supreme Court acknowledged that the health ministry must decide but Indian GST exemption on medicines remains pending. ....

New Delhi , Roche Pharma , Evrysdi Risdiplam , Supreme Court , Foundation Of India , Nirmala Sitharaman , Archana Panda ,

Gene therapy in spinal muscular atrophy

SMN-based gene therapy has offered many patients with SMA and their families hope for a better future. Dr Sheetal Sharda, clinical geneticist and director of genomics division, Neuberg Centre for Genomic Medicine (NCGM) reveals more ....

Evrysdi Risdiplam , Zolgensma Onasemnogeneabeparvovec , Spinraza Nusinersen , Spinal Muscular Atrophy , Gene Therapy , R Sheetal Sharda , Neuberg Centre For Genomic Medicine ,

Roche's oral therapy 'Evrysdi' to provide cost-effective alternative against fatal genetic disorder SMA in India

Roche's oral therapy 'Evrysdi' to provide cost-effective alternative against fatal genetic disorder SMA in India
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Bruno Jolain , V Simpson Emmanuel , Evrysdi Risdiplam , Administration Of Evrysdi , Spinal Muscular Atrophy , Novartis Gene , Managing Director , Roche Pharma , வ் சிம்ப்சன் இம்மானுவேல் , முதுகெலும்பு தசை அட்ரோஃபீ , நோவர்த்திச் கீந் , நிர்வகித்தல் இயக்குனர் , ரோச் பார்மா ,