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Newborn screening measure from Senator Carri Hicks moves forward

The Senate approved legislation last week that would bring apply federal standards regarding infant screenings here in Oklahoma.Senate Bill 1464, by Sen. Carri Hicks, D-Oklahoma City, instructs the state Health

United statesOklahoma cityColin mcewenJudd stromHealth departmentEverylife foundationScreening panelAdvisory committee on heritable disorders in newbornsCarri hicksD oklahoma cityRecommended uniform screening panelAdvisory committeeHeritable disordersCarri hicks

My Water Buddy author, NOAACF co-founder honored by USA TODAY

Michele Wright was named Arkansas honoree of USA TODAY’s Women of the Year.

United statesLittle rockFort smithNorth little rockOak ridgeUniversity of tennessee space instituteChristine tannousMichele wrightTerry wrightEverylife foundation of rare disease rarevoiceMartin mariettaNational organization of african americansBurger kingMichele wiseTennessee spaceAfrican american

Kentucky woman diagnosed with 2 rare diseases on mission

A Louisville woman coping with rare diseases is on a mission to help others with the same journey.

United statesMitch mcconnellSamantha stallingsEverylife foundation for rare diseasesJennifer baileysEverylife foundationRare diseasesDuring rare disease weekRand paulRare disease week

Calculating the Costs of Rare Diseases

Calculating the Costs of Rare Diseases
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

United statesGina cioffiGiacomo chiesiEverylife foundation for rare diseasesUs department of transportationGlobal rare diseases at chiesi groupEverylife foundationRare diseasesChiesi global rare diseasesOrphan drug tax creditGlobal rare diseasesChiesi group

Horizon Therapeutics plc Launches #RAREis Representation Program to Elevate Global Rare Disease Equity

The new program and website are designed to create conversations that will lead to new resources to support diversity, equity, inclusion and allyship within the rare disease community . | February 28, 2022

United statesWrigley fieldWillis towerSumaira ahmedMatt fleschVikram karnaniRareis scholarship fundNational organization for rare disordersRare disease diversity coalitionGlobal rare disease communityWomen healthRareis adoption fundEverylife foundation for rare diseasesRare disease day communitySumaira foundationEq office

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