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6 and novel extended half‐life clotting factors and nonfactor replacement therapeutics,
7,8 it is becoming increasingly important that PwH and their caregivers are sufficiently informed about how their present and future challenges can be adequately addressed with relevant solutions and strategies, to make better and informed treatment and health behavior choices. Therefore, this study aimed to collect data on the level of PwH and CPwH health education and health information-seeking behavior from six Central European countries, to identify perceived disease interference in everyday life, patient information preferences and acquisition, as well as to better understand how the coronavirus disease 2019 (COVID-19) outbreak has impacted people with hemophilia and their caregivers across Central Europe. ....

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