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Woman with rare skin disorder shares story to help others

A WOMAN with a rare skin disorder is sharing her story to help others with the condition ahead of Rare Disease Awareness Day. ....

Clock Face , St Helens , United Kingdom , Mandy Greenall , Epidermolytic Ichthyosis , Helens Star , Rare Disease Day , Steve Prescott Bridge ,

Backworth toddler born with rare skin condition that causes painful blisters

Backworth toddler born with rare skin condition that causes painful blisters
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North Tyneside , United Kingdom , North Shields , Kayla Winston , Lee Winston , Stag Fitness Strength Centre , Epidermolytic Ichthyosis , Helen Lill , Strong Mummy , Whitley Bay , Sunday Sun ,

I'm fed up of strangers' stares and people saying they can cure me

I suffer from a rare condition that means that my skin grows too fast, making it prone to infections, blistering and fragility. ....

Sarah Whiteley , University Of Wales Trinity Saint David , Epidermolytic Ichthyosis , Changing Faces , Wales Trinity Saint David ,

Dunfermline dad raises £3000 in fight to cure rare disease

A DUNFERMLINE man has raised more than £3000 in his family s fight to cure a rare and painful skin condition. ....

United Kingdom General , United Kingdom , Jordan Lark , Epidermolytic Ichthyosis ,

Fife family in fight to find cure for rare skin condition

A DUNFERMLINE woman with a rare and painful skin condition is helping to play her part is finding a cure. ....

City Of , United Kingdom , Hannah Lark , Knockhill Mactuff , Harvey Nichols , Epidermolytic Ichthyosis , Jordan Lark , Hannah Lark Design , Graphic Design Course ,