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CNN Sanjay Gupta MD June 29, 2014 11:54:00

i m really excited to be here, because we re advocating for the children s a.c.e. act. we re advocating, advancing care for exceptional children. we have a lot of children right now that regardless of whether or not they live in a city that has a children s hospital, may not have good access to that care, and medicaid funding, the majority of these patients are on medicaid care, they medicaid support depends and varies depending on the state you live in. one of the things that we found would be most challenging is that for example, since i work at a tertiary care hospital, we have patients that do come from those cities that don t have children s specialty care, when they come to us, we don t have access to their records, their films, we have to repeat ct scans, other imaging, and we have trouble just coordinating the care for when they go home, so the doctors and nurses that are close to them, ....

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CNN Sanjay Gupta MD June 29, 2014 11:53:00

Heart rate there. it doesn t have to be like this. you may know her as half of tlc s the little couple. how are you? she takes care of premature babies at texas children s hospital. how did henry do overnight. not only that, she spent much of her own childhood going to doctor after doctor after being born with a form of dwarfism. last year she was diagnosed with a rare form of cancer, and her surgery for cancer was complicated because of her dwarfism. but today she s in remission. really excited about this new piece of legislation. reporter: this week she went to capitol hill to lobby for a bill that would better coordinate medical care for children. and dr. arnold joins me now from capitol hill, welcome to the program, doctor. thank you so much. you re making rounds on your patients and capitol hill. talking to lawmakers. what are you telling them? how are you presenting the case here? ....

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CNN Sanjay Gupta MD June 29, 2014 11:55:00

Are able to manage things when they re not in our care. there s really a need now as this population of children is growing exponentially to have better coordination of care and a medical home. we re talking about things that could be addressed if the system were more coordinated. you know the system as a doctor, but also as a patient and you have two of your own children that need specialty care. if what you re pushing for goes through, how does your life change, especially with regard to your own children? well, you know, i think it s going to change dramatically for medicaid patients. the majority of the patients i care for as a physician are under medicaid, it really does help to bridge care for those medically complex children out there that don t otherwise have insurance, private insurance or commercial insurance. for my kids, it s going to really help them better coordinate their care, i don t have to kworry about our ....

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CNN Sanjay Gupta MD June 28, 2014 20:54:00

Would better coordinate medical care for children. and dr. arnold joins me now from capitol hill, welcome to the program, doctor. thank you so much. you re making rounds on your patients and capitol hill. talking to lawmakers. what are you telling them? how are you presenting the case he here. i m really excited to be here, because we re advocating for the children s ace act. we re advocating, advancing care for exceptional children. we have a lot of children right now that regardless of whether or not they live in a city that has a children s hospital, may not have good access to that care, and medicaid funding, the majority of these patients are on medicaid care, they medicaid support depends and varies depending on the state you live in. one of the things that we found would be most challenging. ....

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CNN Sanjay Gupta MD June 28, 2014 20:56:00

The majority of the patients i care for as a physician are under medicaid, it really does help to bridge care for those medically complex children out there that don t otherwise have insurance, private insurance or commercial insurance. for my kids, it s going to really help them better coordinate their care, i don t have to kworry about our orthopedic surgeon in delaware getting the information he needs. for me, for example, as of late, our insurance company told me they re no longer going to support us go to due upon. that s scary for me, because i know the experts are there. not all families have this knowledge, having this networking and children s hospitals working together, it becomes known, so families can go you know, they re free to travel to delaware for one thing, and texas for another ....

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