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Limb-Girdle Muscular Dystrophy Leaders Advance Collaborative Dialogue to Accelerate Drug Development to Address the Urgent Unmet Need in Limb-Girdle Muscular Dystrophy

/PRNewswire/ On February 8, 2024, The Speak Foundation, a patient-led 501(c)(3) organization for Limb-Girdle Muscular Dystrophy (LGMD), convened a. ....

United States , Douglas Sproule , Michelle Campbell , Matthew Wicklund , Jannie Kennedy , Katherine Mathews , Kathryn Bryant Knudson , Nicholas Johnson , Peter Marks , Louise Rodino Klapac , Nicole Verdun , Lindsay Alfano , Peter Kang , Peter Stein , James Signorovitch , Jerryr Mendell , Drug Administration , Office Of New Drugs , Everylife Foundation For Rare Diseases , University Of Minnesota Medical School , University Of Texas San Antonio , Analysis Group , Virginia Commonwealth University , Drug Developers , Speak Foundation , University Of Iowa Health Care ,

New 'Voice of the Patient' Report Highlights Unmet Medical Needs of Six Subtypes of Limb-Girdle Muscular Dystrophy

/PRNewswire/ Today the Limb-Girdle Muscular Dystrophy (LGMD) Coalition, a partnership of six LGMD patient organizations, released the Voice of the Patient. ....

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Limb-Girdle Muscular Dystrophy Coalition to Host Externally-Led Drug Development Meeting

/PRNewswire/ On September 23, 2022 at 10am EDT, a coalition of limb-girdle muscular dystrophy (LGMD) nonprofit organizations will lead an Externally-Led. ....

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The LGMD Community Celebrates Adoption of ICD-10 Diagnostic Codes for LGMD

The implementation of these ICD-10 codes represents a culmination of two-years of collaborative efforts within the LGMD patient, clinical, and res. ....

United States , Nicholas Johnson , Paul Melmeyer , Muscular Dystrophy Association , Speak Foundation , Coalition To Cure Calpain , Department Of Neurology , Virginia Commonwealth University School Of Medicine , Jain Foundation , Awareness Foundation , Peter Foundation , Research Fund , Cure Calpain , Vice President , Public Policy , Vice Chair , Virginia Commonwealth University School , Dystrophy Association ,

The LGMD Community Celebrates Adoption of ICD-10 Diagnostic Codes for LGMD

The implementation of these ICD-10 codes represents a culmination of two-years of collaborative efforts within the LGMD patient, clinical, and research. ....

United States , Nicholas Johnson , Paul Melmeyer , Muscular Dystrophy Association , Speak Foundation , Coalition To Cure Calpain , Department Of Neurology , Virginia Commonwealth University School Of Medicine , Jain Foundation , Awareness Foundation , Peter Foundation , Research Fund , Cure Calpain , Vice President , Public Policy , Vice Chair , Virginia Commonwealth University School , Dystrophy Association ,