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Committee Advances Benson & Verrelli Bill Establishing New Jersey Rare Disease Advisory Council January 14, 2021, 6:37 pm | in Committee Advances Benson & Verrelli Bill Establishing New Jersey Rare Disease Advisory Council Bipartisan Legislation Heads to Assembly Speaker
(TRENTON) – In an effort to better understand the unique issues that affect New Jersey residents living with rare diseases, Assemblymen Daniel Benson and Anthony Verrelli sponsor legislation that would establish a New Jersey Rare Disease Advisory Council. Rare diseases are defined as those affecting fewer than 20,000 people. An estimated 25 to 30 million Americans are living with one or more of 7,000 different rare diseases – many of which are genetic. ....