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Muscular Dystrophy Association offering survey for people with neuromuscular conditions


MDA
The Muscular Dystrophy Association is looking for people with neuromuscular conditions and their families to share input through a survey that will drive its advocacy, research and educational work.
“It s more important than ever to make sure that everybody s voice is heard because that s how we can build the best programs at MDA; but that s also, again, not just MDA, it s how can we build a society that s, you know, takes all these different viewpoints all these different voices into account and treats them with respect and can actually address some of their concerns, said Christopher Anselmo.
Anselmo works on MDA s Healthcare Partnerships team as a market intelligence manager where he helps manage MDA s partnerships with biotech and pharmaceutical companies. ....

New York , United States , Christopher Anselmo , Muscular Dystrophy Association , Care Center , Duchenne Muscular Dystrophy , Western New , புதியது யார்க் , ஒன்றுபட்டது மாநிலங்களில் , கிறிஸ்டோபர் அன்செல்மோ , தசை டிஸ்ட்ரோபி சங்கம் , பராமரிப்பு மையம் , மேற்கு புதியது ,

MDA offering survey for people with neuromuscular conditions


Muscular Dystrophy Association
The Muscular Dystrophy Association is looking for people with neuromuscular conditions and their families to share input through a survey that will drive its advocacy, research and educational work.
MDA is offering the survey so individuals and their families can share what barriers they face and what concerns they have. The survey takes about 20 minutes to complete and can be accessed online until May 15.
“It s more important than ever to make sure that everybody s voice is heard, because that s how we can build the best programs at MDA, said Christopher Anselmo, who works on MDA s Healthcare Partnerships Team, but that s also, again, not just MDA, it s how can we build a society that s, you know, takes all these different viewpoints, all these different voices into account and treats them with respect and can actually address some of their concerns. ....

New York , United States , Christopher Anselmo , Muscular Dystrophy Association , Care Center , Healthcare Partnerships Team , Partnerships Team , Duchenne Muscular Dystrophy , Western New , புதியது யார்க் , ஒன்றுபட்டது மாநிலங்களில் , கிறிஸ்டோபர் அன்செல்மோ , தசை டிஸ்ட்ரோபி சங்கம் , பராமரிப்பு மையம் , கூட்டாண்மை அணி , மேற்கு புதியது ,