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People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug In just 42 days, more than 2.6 lakh people donated enough money to pay for the one-time gene therapy Zolgensma for Spinal Muscular Atrophy. Dhairyarajsinh Rathod was diagnosed with Spinal Muscular Atrophy Type I. Mumbai: Paying Rs 16 crore for one injection may seem like an impossible task for most people but that is exactly what the parents of a five-month-old boy in Mumbai have managed to do - thanks in small part to generosity of over 2 lakh people they barely knew. ....
Abu Dhabi’s Burjeel Hospital provides transformational gene therapy ABU DHABI, 26 days ago VPS Healthcare’s Burjeel Hospital has successfully administered advanced gene replacement therapy, in an effort to save the lives of seven-month-old Emirati twins.
With the gracious support of the government and leaders of the UAE, the therapy has been carried out on the twins by the Abu Dhabi based hospital who diagnosed them with a rare and most severe form of Spinal Muscular Atrophy – Type 1 (SMA1), a highly fatal disease.
After visiting Burjeel Hospital for a neurological assessment with Consultant Pediatrician and Child Neurologist, Dr Hussein Matlik, the twin babies were diagnosed with the rare and devastating monogenetic neuromuscular disease, SMA1, which is also known as Werdnig Hoffman disease. SMA is caused by a defective or missing survival motor neuron (SMN1) gene. The genetic disorder affects nerve cells that control voluntary musc ....
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