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transformative and positively impacting their families and caregivers.” Samantha has a strong track record in patient advocacy and gene therapy development, with deep experience in the development of natural history studies, registries, novel patient centered outcomes, and early access planning as well as access to collaborative networks. She previously served as Chief Patient Access Officer at Lysogene, and prior to that, was Director of External Affairs and Rare Disease Partnerships at Orphan Europe. Samantha was a founding member of several pilot European Reference Networks - virtual networks of healthcare providers aiming to facilitate discussion on complex or rare diseases. Samantha is also active in several scientific and healthcare-related organizations including the International Rare Disease Research Consortium (IRDiRC). She earned an MBA in Life Sciences from Open University’s School of Business, an International Management Degree from ESSEC Business School, and a B

France generalNorth carolinaUnited statesChapel hillDavid favreBiologie valroseElvire gouzeImmunecarta caprion biosciencesSamantha parkerSophia antipolisEuropean reference networksInternational rare disease research consortium irdiBusiness schoolFrench national institute of healthUniversity of edinburghUniversity school of business