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CSPAN2 Hearing July 4, 2024

She. The subcommittee will come to order and dmi recognize self for five minutes of o statements. Thank you to our witnesses for sitting here today. The legislation before us will step helping to support rare disease. She a rare disease that affects less than 200,000 patients in the united states. According to the National Institute of hea there are over 10000s as many as 30 million amens despite 10 of the u. S. Population with a rare disease 95 o diseases most patients can evenosed which can be along journey only discover these options. Airbase is challenging especially when it comes to measuring the safety and efficacy of drugs for patient populations he investment and rare diseaseky and unpredictable. Better supportpproval. Research Rare Diseases and the which they seek appr ensure medicare and medicaid will cover this. Priority after program a decade ago bolster existi ....

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CSPAN3 Cancer Scientists Call For Increased Research Funding April 4, 2017

Clinical trials for mine sxorts how cuts to the program could impact future research. This is two and a half hour. The committee on oversight and government reform will come to order. Without objection, the chair is authorized to declare a witness at any time. We have a very important hearing this morning, a faerldly funded Cancer Research coordination and innovation. This one, some hearings are more important than others. I wish it were the type of hearing that was on the headline and the top of the fold of every newspaper that we have. But it is cancer is something that is statistically going to touch every family in some way, shape or form. Unfortunately, ive had that personal experience myself. I lost my mom, Breast Cancer. She fought it for some ten plus years, passed away in 1995. My dad, who was old school. My dad was the kind of guy who never thought he had to have a ....

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CSPAN3 Cancer Scientists Call For Increased Research Funding April 4, 2017

Clinical trials for mine sxorts how cuts to the program could impact future research. This is two and a half hour. The committee on oversight and government reform will come to order. Without objection, the chair is authorized to declare a witness at any time. We have a very important hearing this morning, a faerldly funded Cancer Research coordination and innovation. This one, some hearings are more important than others. I wish it were the type of hearing that was on the headline and the top of the fold of every newspaper that we have. But it is cancer is something that is statistically going to touch every family in some way, shape or form. Unfortunately, ive had that personal experience myself. I lost my mom, Breast Cancer. She fought it for some ten plus years, passed away in 1995. My dad, who was old school. My dad was the kind of guy who never thought he had to have a ....

United States , New York , San Francisco , New Jersey , San Francisco Bay , Kendall Square , Susan Komen , Neil Armstrong , Greg Johnson , Neil Gorsuch , Jon Huntsman Jr , Sean Spicer , Tammy Carr , Elizabeth Jaffee , Paul Mitchell , Johns Hopkins , Tom Cole , Program Impact , Committee Oversight , Cancer Research , Research Coordination , People Day , Nick Mull , President Trump , Plastic Surgeon , Breast Cancer ,

CSPAN Public Affairs Events December 6, 2016

W. Bush administration. When i was in congress we were able to set aside some differences and accomplish some great things. It was the last time we had a balanced budget and our nation. Back to that. I think there is opportunities that now we can Work Together from whatever political thingsion to get some done, particularly infrastructure but it has to start out, any bipartisanship starts out with a process. You build the framework for an initiative by working with the other party from the very beginning. Bipartisanship is not this is an idea, can we get your support for it . That is not true bipartisanship. I hope we can move in the area of infrastructure with a bipartisan process and outcome so we can do something great and take advantage of this opportunity. You. Thank mirror, you are now the head of the conference on mayors. Contentious election. How has that been reflected at the conference and what do you see from your fellow ....

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CSPAN Death Penalty And Criminal Justice December 28, 2014

That specifically treats my cancer mutation. Im sure there are many other victims who would benefit from this innovation, but they must be made aware. For some reason, that knowledge is not being disseminated the patient. I do not know why. It could be regulatory. It could be insurance. It could be government obstacles. I do not know. But, i do know it could save lives. I can only adjust my treatment. Genomic testing work for me, it may not work for all. It is time to invest, and educate with these new innovations in mind. Science is moving rapidly. Traditional medicine in the past currently followed me to change. They need to change now. Back that can be up to you. I strongly believe that with science and funding, all patients will be treated with genomic testing. Though, the cure for cancer may remain elusive, the ability to live and thrive with cancer is well within our reach. Thank you for this opportunity. You have heard from the experts. What i would like to do now is introduce y ....

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