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Orchard Barns Nursery staff prepare for Snowdon fundraiser | Harwich and Manningtree Standard

Orchard Barns Nursery staff prepare for Snowdon fundraiser | Harwich and Manningtree Standard
harwichandmanningtreestandard.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from harwichandmanningtreestandard.co.uk Daily Mail and Mail on Sunday newspapers.

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Bradfield toddler one of six in world with rare condition | East Anglian Daily Times

Aurelia, aged three, pictured with her dad Trevor Williamson.
- Credit: Sarah Williamson
Smiley and sociable Aurelia who was born with an incredibly rare genetic condition that affects only six people worldwide has been described by her mum as just like any other three-year-old .
Aurelia Williamson has faced a number of hardships since she was welcomed into the world by mum Sarah and dad Trevor, back in 2018.
But the Bradfield toddler has bravely faced every obstacle with a smile on her face.
Sarah Williamson says daughter Aurelia is an amazing, sociable and happy little girl, adding that her rare condition does not hold her back. ....

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Aurelia, 3, is one of six people in the world with condition | Harwich and Manningtree Standard

EVERY night when three-year-old Aurelia Williamson goes to sleep, she stops breathing.
Up to seven times an hour, every hour, her brain doesn’t tell her muscles to take in the air and so, for a brief period, she lies breathless.
It’s part of her devastating condition which is only one of six recorded cases on the planet - a VPS4A-related neurodevelopmental disorder.
It has wreaked havoc with how her body functions and central sleep apnoea is just one of the issues associated with her condition.
Aurelia can’t sit up, walk, stand or crawl unaided - it’s why her favourite hobby is to be swung around by dad Trevor. ....

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Parents of girl, 3, with rare condition on heartache over whether to have another child

Parents of girl, 3, with rare condition on heartache over whether to have another child
This week we launched our Aurelia’s Adventures campaign to support Aurelia Williamson. The three-year-old suffers from an incredibly rare and devastating condition, which has left her battling a host of disabilities
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Parents fear daughter, 3, with rare condition won't wake up every time she goes to bed

Parents fear daughter, 3, with rare condition wonât wake up every time she goes to bed
Young Aurelia Williamson suffers from a devastating condition which stops her breathing seven times an hour as she sleeps. She has to be hooked up to an oxygen machine every night
The youngster has an incredibly rare and devastating condition (Image: DAILY STAR/TIM MERRY)
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