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Diagnosis, treatment and support a challenge for millions of Australians with rare diseases

Diagnosis, treatment and support a challenge for millions of Australians with rare diseases
abc.net.au - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from abc.net.au Daily Mail and Mail on Sunday newspapers.

South Australia , United Kingdom , Brant Cumming , Lachy Beckett , Pak Poy , Anna Pak Poy , Nicole Millis , Department Of Health , Rare Find Foundation , Navigator Project , New South Wales , Western Australia , Juvenile Dermatomyositis , Rare Voices , Hanna Pak , Rare Disease Day , Rare Disease Europe , Disease Day ,

Queensland girl allergic to most foods


 
An aspiring Sunshine Coast photographer with a deadly allergy to almost all foods. A Sydney girl missing the middle area of her brain. A Melbourne teenager that s defied the odds to become one of the oldest in the world to live with a genetic mutation that leaves you unable to walk, talk or eat without a tube. And a 22-month Adelaide boy whose life was cut short by a brutal disease.
These are the stories of brave young Australians with some of the rarest diseases in the world. Their families hope to raise awareness and lure funding into research and development in the lead up to Rare Disease Day, Sunday. ....

New South Wales , South Australia , Sunshine Coast , Nicole Millis , Pak Poy , Sebby Coupar , Anna Pak Poy , Marc Coupar , Angelina Moschoudis , Bella Gray , Giovi Moschoudis , Sarah Gray , National Disability Insurance Agency , Rare Find Foundation , National Strategic Action Plan For Rare Diseases , Neurological Research Foundation , National Disability Insurance Scheme , Rare Disease Day , Corpus Callosum , Research Foundation , Mrs Moschoudis , Will Pierce , Kris Pierce , Australian Highland , Breast Cancer Awareness Day , National Strategic Action Plan ,