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Many more adults with Duchenne muscular dystrophy (DMD) are living longer thanks to improvements in treatment, however international standards of care have not yet fully addressed the complex needs of these patients.

United kingdomCity ofRos quinlivanEmily hendersonNational hospital for neurologyCentre for neuromuscular diseaseAdult north star networkInstitute of neurologyLead authorNeuromuscular diseaseNational hospitalDuchenne muscular dystrophyMuscular dystrophyPalliative care