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Sarah. she did. ainsley: after you went to court the law us changed and you have helped other children. how many have you helped? we know 24 children have listed the details have been able to do a list and been on the under 12 and be on the 12 and over. ainsley: have you talked to their parents. i have not talked to the parents. people reach out to us all the time when they re waiting for a lung transplant. i have not spoken to anyone specificcably it. ainsley: she was 10 years old and the law says you don t have access until you are 12 years old to an adult lung. she technically would have access after all the adults ahead of her in lirch would turn them down. by that time wait for 300 people to turn down it s not viable. in essence she didn t have access. it didn t allow her to get preference or children to get preference. it allowed for children to have equal access to be eevaluated how sick they are. treat the sickest person first. like the er you don t put ....
That kind of familiarity. remember the case last year that peter johnson jr. brought to light, 11-year-old needing a lung transplant, got an adult lung. kathleen sebelius blocked it. she didn t understand the technology was changing. right now, elisabeth, we have a problem because things like mammograms are covered, birth control is covered under obama care, but we can t get the cancer care we need. sometimes something works for one person, not for another. it s called personalized medicine. we re going in that direction. someone who doesn t understand the technology of medicine is not going to know how to deal with that. sure. protecting the patient s privacy rights. you made an interesting separation there. kathleen sebelius who did have a background in insurance industry, but is that you say, not a medical background in terms of the treatment and the patient s desire. sylvia burwell, she s been credited with having outstanding business skills, worked on both sides of the aisle w ....
Use it in this risky procedure for a kid, you might be denying it to an adult who will probably fare better. but what i say to that is the following, that adult lung transplant to another adult doesn t have any guarantees either. these things fail all the time. so, there s no guarantee that the adult lung that sarah and javier cannot get will work to save someone else s life. the only thing we do know is that by not allowing sarah and javier and others like them to be on the adult waiting list means they will die. that is erring on the side of life. have you to do what you have to do. to protect life. i mean, i agree, obviously, with everything i ve heard. it s a very difficult, complex, emotional situation. the only thing i would add is that she exists within a community of people who are trying to live, right? a community of doctors who are trying to mete out in the fairest way they have determined over decades of constructing this architecture how to dole out organs, lungs, hearts ....
That she will be receiving this morning. jon: i remember when the judge issued that order that made this all possible it was a very short window of time, just a couple of weeks, wasn t it peter? and i thought, wow, what are the chances that she could actually get help during that him too. lo and behold we have a miracle occurring here. neck nic here. there is another hearing scheduled in federal district court before judge michael babailson on friday as to whether or not he would continue his order and the federal government would show cause why they have a policy in place that discriminates against children that need adult lung transplants here in the united states. obviously i couldn t see sharon, but i heard tears in her voice, it s a day of great, great skwraoup lacing fo jubilation for the family and a sign of hope for many, many other children across the out i ....
Eastern time. what we don t know is whether or not this donor was an adult or a child. it in all probability was an adult. all the furor about this case is children are not allowed to be at the top of the adult donor s list for the reasons that i just described, it s a much more complex complication and it s likely to work much more in an adult to an adult. that s why it takes so long because very few baby donors or child donors become available. for those who are not following this, their daughter suffers severe cystic fibrosis. she needed this surgery as soon as possible to save her life. this is part of the conversation, when you take an adult lung and place it in a child, you say there s only been one? there s only been one suck sisful cases in history so the chances of it working are first of all, our hopes and prayers have to go out to this ....