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Robert Paulson, Long-Term A.L.S. Survivor, Is Dead at 86

He lived with the condition also known as Lou Gehrig’s disease much longer than most and spread the message, an admirer said, that disability was “just a different way of living.” ....

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The French Music Maker Pone Tries to Reclaim His Lost Voice

The rap producer known as Pone, who has A.L.S., speaks through a computer that makes him sound robotic. He asked a comic impersonator to try to recapture his distinctive sound. ....

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When Dying Patients Want Unproven Drugs

Patient-advocacy groups mobilized to demand access to a controversial new drug called Relyvrio. But hasty approval comes at a cost. ....

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FDA Approves ALS Treatment Despite Questions About Effectiveness

The drug is safe, and one trial found it may extend survival and slow paralysis in functions like muscle control and speaking. A larger trial will be completed in 2024. ....

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FDA Approves ALS Treatment Despite Questions About Effectiveness

The drug is safe, and one trial found it may extend survival and slow paralysis in functions like muscle control and speaking. A larger trial will be completed in 2024. ....

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