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Detailed text transcripts for TV channel - BBCNEWS - 20210616:12:21:00

Out his letter neat enough for the prime minister. he s nine, though keen to point out he ll be ten next month. and he s got a lot on his mind. getting a prescription from the nhs would help them a lot. please support my family and all the other families. yours sincerely, thomas braun. i m feeling excited to finally, maybe, help the solution to get eddie to live a better life and i m feeling quite nervous as well. because i feel like there s pressure for me on trying to help eddie. eddie was born with brain damage following a rare genetic mutation. he has cerebral palsy, learning disabilities and severe complex epilepsy, and it s for that he takes medicinal cannabis. he s six tomorrow, and has been on the drug since early 2017. it s not an nhs prescription, so it costs the family £780 a month. ....

Prime Minister , Thomas Braun , My Brother Eddie , Cerebral Palsy , Learning Disabilities , Brain Damage , Agenetic Mutation , Medicinal Cannabis ,

Detailed text transcripts for TV channel - BBCNEWS - 20210616:05:49:00

I want to only do the best for my brother my family, and i need to do things that are probably out of my comfort zone but i should do them to help eddie. eddie was born with brain damage following a rare genetic mutation. he has cerebral palsy, learning disabilities and severe complex epilepsy, and it s for that he takes medicinal cannabis. he is six tomorrow, and has been on the drug since early 2017. it s not an nhs prescription, so it costs the family £780 a month. we have been lucky, we ve had friends do some crazy events and raise money for us but covid has obviously hugely affected that. you know, some of the other families we know, they ve run out of money already, their kids are no longer on the product that was helping them and are doing worse for it. you know, they re back in hospital, they re back having lots of seizures. another family have sold the family home. ....

My Brother Eddie , Comfort Zone , Brain Damage , Cerebral Palsy , Medicinal Cannabis , Learning Disabilities , Agenetic Mutation , Mo Ney , Co Vid ,

Detailed text transcripts for TV channel - BBCNEWS - 20210616:10:45:00

Are probably out of my comfort zone but i should do them to help eddie. eddie was born with brain damage following a rare genetic mutation. he has cerebral palsy, learning disabilities and severe complex epilepsy, and it s for that he takes medicinal cannabis. he is six tomorrow, and has been on the drug since early 2017. it s not an nhs prescription, so it costs the family £780 a month. we have been lucky, we ve had friends do some crazy events and raise money for us but covid has obviously hugely affected that. you know, some of the other families we know, they ve run out of money already, their kids are no longer on the product that was helping them and are doing worse for it. you know, they re back in hospital, they re back having lots of seizures. another family have sold the family home. so it s a very, very real crisis that we are all facing. ....

Detailed text transcripts for TV channel - BBCNEWS - 20210616:09:53:00

So it costs the family £780 a month. we have been lucky, we ve had friends do some crazy events and raise money for us but covid has obviously hugely affected that. you know, some of the other families we know, they ve run out of money already, their kids are no longer on the product that was helping them and are doing worse for it. you know, they re back in hospital, they re back having lots of seizures. another family have sold their family home. so, you know, it s a very, very real crisis that we are all facing. we can t maintain private prescriptions and we need the government to act now to help us. thomas, can you pack your bag, please? the law was changed three years ago to allow nhs doctors to prescribe medical cannabis. but campaigners sayjust three nhs prescriptions have been issued. leaving thousands of families to pay for the drug privately. and that s why tom and his mum are off to downing street to ask the prime minister personally for help. ok, i m ready, coming. ....

Mo Ney , Covid 19 , Thomas Braun , Benjamin Netanyahu , Downing Street ,

Detailed text transcripts for TV channel - BBCNEWS - 20210616:08:54:00

And i need to do things that are probably out of my comfort zone but i should do them to help eddie. eddie was born with brain damage following a rare genetic mutation. he has cerebral palsy, learning disabilities and severe complex epilepsy, and it s for that he takes medicinal cannabis. he is six tomorrow, and has been on the drug since early 2017. it s not an nhs prescription, so it costs the family £780 a month. we have been lucky, we ve had friends do some crazy events and raise money for us but covid has obviously hugely affected that. you know, some of the other families we know, they ve run out of money already, their kids are no longer on the product that was helping them and are doing worse for it. you know, they re back in hospital, they re back having lots of seizures. another family have sold the family home. so it s a very, very real crisis that we are all facing. we can t maintain private ....

My Brother Eddie , Cerebral Palsy , Comfort Zone , Learning Disabilities , Brain Damage , Agenetic Mutation , Medicinal Cannabis , Co Vid , Mo Ney ,