Jim axelrod will report our cover story. Allison bucks son is turning six on tuesday. Which is unleashing some complicated emotions. Every birthday feels like another year less that you have. Dont turn six because youre getting closer to ten. Exactly. Sam has a rare brain disorder that is often fatal by ten. Its one of 7,000 rare disease with no cure. I want to get it put a face to each one of these Rare Diseases. Ahead on sunday morning. Osgood coming soon to the summer screen a new movie featuring meg ryan in an important role. Sorry. Harry met salie, america met meg ryan. Oh, yes yes how many takes did that take . It was im sure it was all day. Because by the end, who cared what sound i made. Just making big sounds. Meg ryan on life in front of and behind the camera ahead on sunday morning. Living legend. Shes out with a new album and visiting old haunts with Anthony Mason. . Half a century ago Barbra Streisand made her break through on broadway in funny girl. Did you have a ritual before you wept on the stage . You mean, pray . No. I didnt. Into the moment. Later on sunday morning, back to broadway with Barbra Streisand. Osgood christmas in august . Whoever heard of such a thing. Our luke burbank, for one. . Where is old st. Nick in the summer . You just might find him and few hundred friends in branson, missouri, of all i saw him on the bus. Ahead on sunday morning, its more santas than you can shake a stick, or actually a candy cane at. Give me a ho ho ho ho. Anna warner guides us through exhibit of works in progress. Michelle miller visits a School Music Program hitting all the right notes. Steve hartman tracks a navy man those stories and more. Here are the headlines for this sunday morning the 28th of august, 2016. Italys state museums are dedicating their proceeds today to the rebuilding efforts. In the area devastated by wednesdays earthquake. Nearly 300 people were killed when three medieval towns were mostly reduced to rubble. The u. S. Ambassador to jordan said today that despite a start, the Obama Administration will reach its goal tomorrow of taking 20,000 refugees from wartorn syria. In mississippi, Authorities Say the man arrested in the killing of two nuns on wednesday has confessed. A wake is scheduled today for sisters margaret held and paula merrill. Theres no known motive. The San Francisco 49ers say they are respecting their himself. Colin kaepernick sat during the National Anthem before an exhibition game friday night. Kaepernick says he cant, in his words, show pride in a country that oppresses black people. The nfl says its players are encouraged, but not required, to stand during the National Anthem. Now to weather, thunderstorms are expected in parts of the northeast and midwest and south to florida, louisiana ande sunny skies over the west. The sunshine continues as the calendar turns to september in the week ahead. But watch out, a Tropical Storm is brewing in the atlantic. Next, children in need of a miracle. And later a visit with Barbra Cooper governor mccrory wants you to believe theres a carolina comeback. But raise your hand if your taxes have gone up while those at the top are the ones getting the tax break. And raise your hand if youre working more for less. Im roy cooper, and thats not a comeback. Thats moving backwards. Raise your hand if you agree that those at the top should pay their fair share. Raise your hand if you agree that tax breaks should be going to the middle class. And raise your hand if you agree that a comeback should include everyone. Osgood when children are dying of Rare Diseases that few people are work to be cure, a closer look is required. Which is just what one committed artist is providing. Our cover story is reported now his high wattage smile and infectious laugh may remind you of a favorite nephew, there is virtually no chance you have ever met a kid like him. Sam, who will turn six on tuesday, is one of just 250 people in the world who suffer from vanishing whites matter disease, a brain disorder that destroys white matter. A substance that h loss of motor control. There is no cure and the disease is typically fatal by the age of ten. Every birthday feels like another year less that you have. Dont turn six because youre getting closer to ten. So much we want to do with him. Allison buck and her husband, nick, have kept careful track in the three years since their has slowed down. What is your favorite part of being in school . Play time. And his ability to walk slowly eroded, leaving him now unable even to stand. I think its really hard for people to wrap their heads around the fact that a child as vibrant as sam could be dying. The bucks are trying to show sam as much of the world as left. Hes been to 30 states and 19 countries, from these mayan ruins in mexico, to meeting his hero, form mu one race car driver Sebastian Vittel in texas. Hes even managed to squeeze in a meeting with the duchess of cambridge. We dont want to waste all our time worrying about whats to come. We want to enjoy whatever time we have with him. It is not a pretty thought of kids suffering from Rare Diseases. 95 of all Rare Diseases have no Treatment Options at all. With so few people suffering from them, there is no incentive for research and development of a cure. Want to get it just perfect because it really means a lot. Thats a fact not lost lucas could also saw, an artist, a curator of beyond the diagnosis, a collection of intimate portraits of children with Rare Diseases, like bertrand. One of the first kids he pained for this traveling exhibit he was the first patient ever diagnosed with something called ngly1 deficiency. Bertrand has hundreds of seizures every day. I took the wheelchair out. I just made him look like he was real person that im dealing with. The objective is to humanize these diseases through portraits of kids like theodora who has a fatal heart condition. Meagan who suffers from a rare disorder that slows the blood flow to her heart and lungs. And hanna, who suffers from a rare form of epilepsy leading to progressive loss of motor skills. Maybe somebody will look at this and be inspired to maybe find a cure for i beyond the diagnosis, hopes to eventually put a face to all 7,000 of these Rare Diseases. Its ambitious. But were going to do it. The idea was hatched by ferrone trish sha weltin of the rare disease united foundation, whose two daughters suffer from Rare Diseases. You cant look at these not be moved. So far theyre up to 60 portraits by artists from around the world. Words. You dont just gee gauche disease you see noh. You dont just see moebius syndrome you see miriam. That was the point. I can accept that im in a wheelchair and thats where im going to be. They are the faces of duchenne muscular dystrophy, a rare muscle wasting often fatal by age of 20. Most kids with my disability are on deaths row. Theyre basically towards the end of their lives. But the brothers have more hope than most kids suffering from a rare disease. An experimental drug seems to be helping, its not a cure, but it does seem to slow down the progression of the disease. Austin and max are two of roughly 100 children enrolled in cliff. Jennifer is austin and maxs mother. Shes seen austin able to maintain concern functions while on the drug and regain others like raising his arm above his head. Max, one of the first to get etiplersen, is still walking more than four years later. But in this world of rare disease, hope is an elusive commodity. The path easy in part because sample size is so small. Im uncomfortable with the evidence to date. Four months ago an f. D. A. Panel recommended against approving etiplersen until the Company Provided more data that the drug actually works. If that decision becomes final, it could threaten access to the drug for the leclaires. Its almost worse to be shown something that could treat your children then to be told it to just come to terms with having children that are ill. It creates conversations. Which brings us back to lucas and the moving way he hopes to keep attention focused on Rare Diseases and pressure on researchers and regulators who may be able to provide hope. And theyre trying to do the child justice and the family justice. When we first met him at his gallery in rhode island, lucas wasut touches on the portrait of sam buck, precise, delicate work using a syringe to form images, dot by dot. I get pretty involved with it. It becomes very difficult to actually paint. Because i start to fully understand what this kid is going through and what the family is going through. Then its no longer a portrait to me. Its really a personal experience. But even lucas didnt know how personal until he brought a look. Just incredible. How amazing is that . Who is that . Me . Now, vanishing white matter has a face. His personality really shows through in the painting. It does. You captured his joy. A sweet, darling face to put on this hideously cruel and destructive disease. Every cause needs a face. Yes. Thats a beautiful face. Y my dishes . Oh, he doesnt know any better. You just need to add finish . Jetdry . In the rinse aid compartment. Its there for a reason. It dries much better than detergent alone. Sorry dishwasher. Finish . Jetdry . For drier, shinier dishes. But theres so much more to it. Heres how benefiber . Works. Inside us are trillions of good microflora that support digestive health. The prebiotic fiber in benefiber . Nourishes them. And what helps them, helps you. Clear, tastefree, benefiber . Hey, youre clarence yes, sir. You know, at the model year end clarence event, you can get a great deal on this 2016 passat. Steve. Yeah . Clarence is on a roll. Yeah. I wish theyd name an event after me. Stevent thats just vandalism. Whatever you want to call it, dont miss the volkswagen model year end event. Hurry in for a 1,000 volkswagen reward card and a five hundred dollar labor day bonus when you buy or lease a new 2016 passat. Osgood now a page from our sunday morning almanac. August 28th, 1908. 108 years ago celebrate. For that was the day writer, painter and naturalist roger tory petersen was born in jamestown, new york. A lover of birds from boyhood, petersen believed he could improve on the overly technical bird watching manuals of the time. Became evident that it was possible to identify almost any bird if you knew a few things to look for on each bird, the field wrote and illustrated his own field guide to the birds. It was published in 1934. Only 2,000 copies were printed and i was to receive no royalty on the first thousand. But for some reason the field guide just took off almost immediately was literally sold out within a week. When sunday morning visited him at his connecticut home in 1980, petersen was busy refining his bird paintings, confident that they were truer in their wa a photograph is a record of a split second that moment. And the painter offers a composite of his experience. Osgood president jimmy carter awarded petersen the President Shall medal of freedom that very same year, 1980. Appropriate since freedom is exactly what petersen envied about his subjects. Birds because they were wonderful creatures, they can fly, go where they wanted to when they wanted to, i wish i could do that. He died in 1996, a month shy of his 88th birthday. His field guides are still in print and still cherished by bird lovers everywhere. Osgood now some works in progress. Its an exhibit of unfinished works of art and just finished branch. New York Metropolitan Museum of anna warner is our guide. Its a new face for one of the nations largest and oldest art museums. And a new calling for a familiar new york City Cultural landmark. Welcome to met breuer. Why did the met, one of the worlds most visited museums, need another location . Modern contemporary art since its inception. Thomas campbell, the mets director and ceo. We want more space, we want to be more exploratory we want to do more. With that in mind the met went looking for a modern locale to expand its contemporary offerings, and found the perfect fixer upper around the corner, just a brief stroll away. And here we are, nine minute walk from the Main Building in a space that was modern and contemporary, so really it was a great gift. You may recognize it as the former home of the whitney museum, which recently moved to a new space in downtown manhattan. Its a landmark structure, designed by architect Marcel Breuer which opened in 1966 the hungarian born, german trained breuer, became wellknown for designs, come to be labeled brute list. Do you see a masterpiece . Absolutely. Im in love with this building. Sheena wagstaff, the mets chairman of contemporary and modern art had the job of taking this older, familiar space, and making viewers see it with fresh eyes. We wanted to take the Building Back to the way that Marcel Breuer designed it, that meant taking off cablings, all sorts of attachments in the walls. Even taking the gum out of the concrete, which was highly meticulous job. A mundane kind of problem, but it all adds up. Yes. The result is a stripped down, cleaner space. A building that lets the art speak for itself. Just the idea behind the called unfinished thoughts left visible. Many of the works in this room you can really see where the painter stopped. Andrea bayer and kelly baum are the cocurators featuring works left incomplete or given an unfinished look on purpose. They collected 200 pieces from the renaissance through today, from artist including da vinci, they allow us to see beneath the surface to earlier layers. Kelly. They give us profound insight into the artistic process. For example, this 1965 alice neil portrait of james hunter black, a vietnam draftee. She got as far as his face, neck and one of his hands. The rest of the pick sure she only sketched in. The sitter never returned for a second sitting. Yet, alice signed the painting on the back and exhibited it during her lifetime because she deemed this incomplete painting finished, perfect. The unusual search for incomplete works took these curators around the world, says andrea. We were looking at things, we had heard about things. We went and investigated them. When they grabbed us with their story, then we went forward with them. Sounds like a fascinating treasure hunt, art hunt for you. It tell historical stories like this painting by the 18th century french artist, jacqueslouis david. He we began this portrait of this young woman, madame de pastoret, the revolutionary war came. She and her husband were on the monarchy side, david was a strong revolutionary. And so the portrait could not be finished. There are certain details in it sewing, because theres no needle and thread there. So revolution made for an unfinished portrait. Political upheaval interrupted a work of art. So, what do we learn from looking at unfinished works of art . They allow us to imagine ourselves alongside the artist working in his or her studio, painting, scraping, editing, allow us to recreate the w work of art was made. The person who was making the work has to decide when it is finished. How they want to finish it. Are they capable of fin,ing it. These are questions that are at the heart of the making of any kind of art. Because art and sometimes even the museums that house it, youve got mail. Yes osgood still to come. Very powerful words. Osgood meg ryan on the summer screen. . And, her name is barbra. . Donald trump facing new criticism he appeared to mock a reporter with a disability. You gotta see this guy. uhhhh i dont know what i said, i dont remember. hes going like i dont remember. Putting a wife to work is a very dangerous thing. I dont want to sound too much like a chauvinist. You have to be wealthy in order to be great. Im sorry to say it. Dvertising. Z23ivz zi0z dont you hate flying . Yes, i do. I said flying. Oh. Its sunday morning on cbs, here again is charlesoo summer screen featured meg ryan in the romantic comedy sleepless in seattle. The new film this summer, meg ryan is making her mark out of camera range. Heres jane pauley on ryans career, past, present and future. Sorry generation to the romantic comedy. You realize that we could never be friends. In 1989, when harry met salie. This is not a come on in any way shape or form. Men and women can be friends, next part always gets in the way. I remember reading the script and thinking it was such a delight. The dialogue was so fast. I have a number of men friends theres no sex involved. , no you dont. Yes, do you. Well, you think you do. I read it i thought it was music that i would want to play. Are you okay . More than 25 years later, the deli scene is a hollywood classic. Oh oh oh, god, yes yes how many takes did that take . Day. Because by the end who cared who sound i made, just making all kinds of big sounds. Everybody was used to it by then in the textli. Ill have what shes having. . Ryans girl next door meets modern woman appeal paired with tom hanks in the 19 0s romantic comedies sleepless in seattle. And youve got mail. Very powerful words. Romantic comedies in particular, are not too funny. The notes you have to hit, you have to be kind of very specific. Its a very sort of refined little place you have to get to. In a great romantic comedy maybe the actress doesnt get her due professionally because, it just looks so natural. Those are the hard ones to do, though. Dont cry. Ryan made them look effortless, though she was not a trained actress. How did you become an actor . I was paying my way through journalism school. Jane, you scoffed when i said it before but you on television in the morning were such an so elegant, so funny, so smart. So out of her depth. So not out of her depth. So making everything accessible to everybody. I guess its hard to hear that but it is true. Thats pretty thrilling but, your past was meant to be dramatically otherwise . I guess so. Known as peggy hyra at new york university. Just have to tell you about arent you back to the most important reason to come to burger king. Go uptown and do auditions, i would write papers. I wrote a paper about my audition for a soap opera then i got the soap opera. Professionally meg ryan now, but better kn