An instant bond. Its all we both wanted. When adi started speaking and calling, daddy, thats. I mean. For me, its nothing better. Gavin and his wife, jodie, adopted adi when he was eight months old and brought him home to sheffield. He wasjust such an easy, happy baby. It werejust, like, perfect and it were just like all wed ever waited for and then itjust happened. Adi had some minor ailments a cold, some Breathing Issues and eczema. Then, in november 2022, he died in his sleep. Ijust went in like any other morning, and. Yeah, just. He werejust laid face down and. | just tried to wake him up. Yeah, just. He was just cold. And. Thats when. Gavjust started shouting. Sol knew something was wrong, so i rushed out of bed and we phoned an ambulance straight away and then, obviously, just the worst thing that could ever happen, happened. And going to the hospital, and not coming home with your child is just like the worst pain that you could ever feel. Itsjust like i didnt want to. I didnt want to leave him on his own. Adis death is whats called a sudden unexplained death in childhood, or sudc. Youve probably never heard of it, but there are about 50 of these deaths a year in the uk. And this isnt young babies, what used to be called cot death. These are older children and doctors have no idea why they die. Its still horrific not knowing what happened to my daughter and i am by no means unusual. There are lots of families out there who, decades later, dont know what happened to their child. Its ten years since nikki speeds two year old daughter, rosie, died. Another unexplained child death. You were trying to beat theo . No, i was trying to beat willy. 0k. Nikki helped set up and now runs a National Charity that supports parents and pushes for more research. There are medical reasons for these child deaths. Its one of the most under recognised medical tragedies of our time, and anybody that knows about sudden unexplained death in childhood, or works in this field, will say that. They will say they are medical tragedies and we need to take steps to understand them and stop them from happening. The key is scientific research. There have been more than 10,000 studies into sudden infant deaths. Parents now know how to keep their babies safer and thats led to an 80 reduction in infants dying unexpectedly. But sudc is different. Its children between one and 17 years old and there have been fewer than 100 scientific studies. Experts say we know almost nothing about which children are at risk. The only things that weve seen as risk factors, its a bit more prevalent in males, sudc. Its more common during sleep periods. Its more common if the child is not witnessed during that period of time. And not knowing why a child has died can lead to parents being falsely accused of causing harm. It happened to this couple in 2021. Were protecting their identities because they became suspects when they couldnt explain their sons death. He was a whirlwind from the get go. He wasjust the life and soul of the party, wasnt he . Their son also died without warning during the night. I walked across the floor. I creaked a floorboard in the bedroom. Sobbing. There was no sort of. Movement or anything from him, which started l ringing alarm bells for us. All i heard was, hes gone, hes gone. Instead of being treated as a tragedy, the death was treated as a crime. There were just plain clothed officers everywhere. There was uniformed officers and plain clothed officers. So at this point, i was bundled in the back of a police car by the sergeant, and she wasl bundled in the back of a police car by two officers. We were just pretty much told, j youll have to find somewhere to live for the weekend because your house is l because your house is now classed as a crime scene. Their other kids were taken into care by childrens services. For months, they could only see their children on supervised visits. They werent cleared for nearly a year, when the coroner confirmed their sons death was from unidentified Natural Causes. When is the first time that somebody tells you whats happened . Probably the inquest. The inquest. What do you think about that the way you were treated . I havent even got words for it. I felt like a criminal. Like, i felt like they knew that id done something that i hadnt. And thats the way we were made to feel all the way through. The police have apologised to the family and say theyve learned from what happened. The family say they were also let down by the nhs. They didnt receive any support, even though the government says the nhs should provide a key worker when a child dies unexpectedly. Still waiting for postmortem to come back. Ok, so shes been released, theyve had the funeral. Yep. The funerals actually today. This is one of the few nhs teams supporting families, whove suffered the sudden unexpected death of a child. They cover birmingham and solihull. And mum and dad and family. . Yeah. Mums been 0k. Weve talked about Bereavement Support and they will both, both mum and dad will need Bereavement Support, so ill ring them in the next couple of days. 0k. Its led by one of the uks experts on sudc. I think its very important for families to know that absolutely everything has been done to find an answer for why their child died, even if, in the end, we dont find an answer, but they know weve done everything we can. So, five year old mum described him as well. Hed been kind of satl up, you know, playing with his siblings. So, is there anything parents can do to prevent an sudc death . No, i dont think theres anything. Because we dont know what causes it, we dont know any risk factors for it, theres nothing we can do to prevent it at the moment. And when it strikes, sudc can be a lonelyjourney for the family. At christmas, there are no decorations in gavin and jodies home. Do not want to celebrate. Last christmas was horrible. This christmas, ive been saying, i do not want to celebrate it without my son. Its not. That is it. Well, if theres anything on there that you think, you know, that you could ask questions on. They feel they havent had enough support, so gavins Father In Law is helping him prepare for adis inquest. So, on that one, theyve really gone in in depth on that one, havent they . Theyre finding the medical documents hard to understand. I mean, if i were guessing, it looks to me what theyre saying is its some type of medicine. I dont know. Gavin wants answers, but he cant find a lawyer to help. Right. So this is a solicitor. So ivejust phoned up. Its on the website and they said they dont deal with it. Yeah, thats probably the fourth, maybe fifth solicitor ive tried contacting. Because you were told to get legal representation for the inquest, werent you . Which is. Which is approaching fast. Yeah. And when you ring a solicitor, theyre just saying they cant help. Yep. Every one. Its just near on impossible. At that inquest, that is it. Its case closed after that. And weve not been able to gather all the questions and get legal representation. Questions havent been answered, so its. For me, its ridiculous working like that. Just want to scream. Just want to. I dont know, get hold of somebody and say, please help them get some answers. He sighs. Its soul destroying. I mean, were never really going to be able to grieve properly till we actually know why adi died. Why a two year old child, who were full of beans, is here at night and then gone. Next morning. Ken used to look after adi a day a week. He just kept me young. He used to make me wait at Pelican Crossings while tgreen man come on. Wouldnt let me cross before green man. He was a smashing lad. He were marvellous. This is a hard christmas forjodie. Not great, mentally. I think, with the inquest l coming up and christmas, itsjust, like, a very difficult time. Its kind of Difficult Knowingl that youre going through all this and trying to get answers but, i think, deep down, you know that youre not going to get the answers that you do actually want, i because nobody does seem to know what happened because nobody knowsl enough about sudc. There are signs of hope the first clues in the search for answers. Those are vessels . Yeah. Important research into sudden unexplained deaths in childhood is happening here at new york university. The lead investigator found out about sudc in the worst possible way. Her 15 month old daughter died unexpectedly 25 years ago. Maria did not wake up from a nap one day and my whole life turned upside down. Shes definitely my passion behind this to. Not let this happen to someone else. On average, theres an sudc death every day in the us. Researchers here have had a breakthrough and it comes from families, who have video monitors, nanny cams, watching over their children. The team looked at footage of five children, who died unexpectedly in their sleep. It was extremely challenging to watch and rewatch those videos for the sake of science. You want to jump through the screen and save them. Its a big, big step because again, its a window into these tragedies these mysterious deaths and no one has ever had evidence directly from the scene. This is katie putting her 17 month old twin sons to bed in november 2022. Its the last time she said goodnight to one of them, hayden. I love you, hazy. Hes in the cot nearest the camera. Seven hours later, he would be dead. Good night, guys, get some sleep. I im grateful that the last thing that i said to him was, i love you, because. I shut the door that nightj and i told them both that i loved them. Hayden was lively and healthy. He loved to dance. Always a smile on his face. Yes. Any time music would come on, its like, hes got to get the wiggle in. Look at that music plays. Is this your favourite song in the movie, i hazy . Its fantastic to have these memories, though, isnt it . They� re just. Theyre just there. It was the best kind i of chaos and i miss it. Yeah applause. Baby babbles. Yay, hazy as soon as katie and justin heard about the research, they wanted to share the footage of haydens death. I want to know. I want to know what happened to him. But. The bigger part of this i is, you know, whats different . What was different about hayden . Can you identify that in a living child . You know, you want your children to grow up and leave their mark on this world, and he cant grow up,. But he can leave a mark. I feel fortunate enough to talk to you about hayden and say his name. And, for anybody that actually watches this, tojust. Take that information and tell another parent. Because the only way that this is going to change, and theres going to be more funding and more research, is for more awareness. I love you. Were not showing haydens death, but the footage given to the researchers showed he had a seizure. Thats a fit that can be brought on by a fever or illness. It was the same for all four of the other children, whose deaths were filmed. Its only a small number, but the researchers say it could be significant. I love you, hazy. I believe its a major breakthrough. I think we have a huge clue. I think its possible to start enlarging the circle of children, who are at risk for sudc, and certainly the Febrile Seizure Population would be the prime candidate of children to look at. Laughs. Lots of children have seizures and most will be fine. The researchers want to work out why a small number of them die. Shake a leg. Theyre now building a world sudc database to look for patterns and for more evidence. I think our next step is to identify how do we identify which children are at higher risk for sudden death . I think for parents right now, its a conversation to have with their paediatrician. Am i doing everything to decrease the risk as much as possible with the information we have right now . Back in sheffield, its an important evening for gavin and jodie. You all right . Theyre meeting the pathologist, who examined adi after he died. Can we say its really good to meet you . Hi. Hi, marta. So the reality is that i dont have an answer for you today. He was a beautiful, well looked after child. Remember, in the months before he died, adi had a few colds, problems with breathing and some eczema. I is there more tests that can be l done when theyre showing signs of any illnesses . Yes, he had some cold, ifound some viruses, but that is not the cause of death. Next, a fear thats haunted them for more than a year. Could they have done anything to save him . You dont think that. We could have i missed anything . No. That. And i want you to think that this is not your fault. I want you to think that he didnt suffer. Its nothing you could have done to avoid. Thank you. Aw, thank you. If youre happy, i can give hug. Its a reassurance that matters to the family. Sheffield childrens nhs trust was responsible for supporting gavin and jodie. It says it recognises there are areas for improvement in Bereavement Support and its undertaken a thorough review to do this. The nhs says it. And that all. For families when theyve lost a child. It says the. Clapping. Ha ha ha there you are 0h. No you fell over. 00h laughs. Here in worcestershire, there is a trained nurse to help families. We felt like you were our voice. Having Somebody Advocate for you when youre going through something that hard, its. Yeah, it means a lot. Because, you know, those,. Those early weeks, those early days are just so hard, arent they . Both yeah. Two year old benjamin died in 2022. John and laura have had nurse donnas help from early on. I think parents can feel really lost. I im really passionate about my role and, you know, holding those parents hands throughout the process. I always make it clear to parents, i cant make this better for them, but anything that i can do for that family. To make it easier, i absolutely will. I will you bring my scooter . He was this happy, robust, energetic, lively little boy, whojust, one day, like that, and you just. You need to know that everything is being done that should be being done, to find out. It just. Yeah, it felt like a bit of a fight to get answers. Theres a lot of medical jargon in these reports, but actually, having a paediatrician and donna in the room to talk it through and explain things to us, yeah, it was a massive, massive help. Yeah. Even though its a statutory requirement, more than half of nhs areas in england dont have a Specialist Nurse to visit parents after an unexpected death. Bereaved families after the sudden death of a child are the most Vulnerable People and if we dont put in early support and help them get. Get the support they need, were setting these parents up for a lifetime of misery. Given what you do, how does it make you feel that some areas are just not providing these crucial nurses . It makes me really angry. Gavin and jodie are going through it alone. This is the day theyve been waiting for but dreading. Its adis inquest. Gavin and jodie will have to ask questions themselves, as they still havent found a lawyer who can help them. I always feel really anxious before these things. Its going to help towards, you know, hopefully, finding out whats. Whats happened. I hope it does. So, for an hour and a half, that terrible morning was relived. The coroner looked at the details of adis Life And Death before recording her verdict. The inquest was always a big moment for the family because it sort of was, hopefully, the end, but a verdict of Natural Causes with sudc, its what the family expected, i think, but its also what they feared because it isnt a conclusion, it doesnt end. Sudc is just an admission that we dont know and that doesnt really help the parents. Im kind of glad its out of the way, but we still have a lot of questions. Its not going to bring him back, so. I thought you were both incredibly impressive in there. You did have your voice and thats on the record. Thats just. That is a place where. Yeah. Where youre heard. Yeah, yeah. About trying to make a difference and raising awareness while were doing this. If it can help just one more family, then weve kind of set out to do what. We wanted to do. Its a kind of death that most of us have never heard of. But sudc is a parents nightmare. Your child dead and no reason why. Unexplained child deaths are the most difficult for families to cope with. Theres really nothing we can suggest to parents that will protect their children from it. Every time i walk up to haydens brothers bed now. My heart stops. I relive that moment. Sudc isjust. Something that is our burden to carry now. This is a category of death, the sudc. Its not the cause and nobody dies for no reason. Something happens to these children that its happening to, but nobody knows what. These deaths cant yet be predicted or explained. They leave broken families and questions. The search for answers couldnt be more important. Live from washington, this is bbc news. Animalfeed and rice gaza residents resort to Desperate Measures for food as the un warns of a looming famine. A missing six Year Old Girl is found dead in a bombed out car in gaza city, days after her pleas for help Drew International attention. And republican rivals for President Donald Trump and nikki haley hit the Campaign Trail in south carolina, two weeks out from the states critical primary. Hello, im carl nasman. We begin in gaza, where the humanitarian crisis is deepening. Residents tell the bbc they are surviving on animal feed and rice as food stocks dwindle. The un says 300,000 People Living in the isolated north of gaza are largely cut off from aid. More than half the aid missions to Northern Gaza were denied access last month. That is according to the uns humanitarian Co Ordination agency. Mahmoud shalabi from Medical Aid For Palestinians says the situation there is dire. The Israeli Military says it does not limit humanitarian aid sent to gaza and that there is no starvation there