Teen undergoes life-saving surgery for rare disease BEL AIR, Maryland (WJZ) — A Bel Air teen, fighting a rare disease, finally got a surgery Friday that could save her life. Macey Breitenback recently learned she will receive a critical organ transplant. It brought tears of joy, 19 years in the making. WJZ first met Macey four years ago when we learned about her rare incurable disease called visceral myopathy, a smooth muscle disorder that affects all of her organs. Most of her stomach has been removed and she’s fed through a central line in her heart. Macey has had nine exploratory surgeries.