Transcripts For BBCNEWS Inseparable Sisters 20240702

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something that you didn't expect. something that you never imagined. i would not pretend that it is easy, it is not. but it is a huge privilege, a huge blessing. you feel lucky to witness this constant battle for life. adman stuart primary school in cardiff bay, marieme and ndeye are celebrating a special milestone. happy birthday! birthday girl! hello! how are you! good morning! have you got new hair? here's a seven today? seven! what time were you up this morning?— this morning? four o'clock in the morning. _ this morning? four o'clock in the morning. four— this morning? four o'clock in the morning. four o'clock. i this morning? four o'clock in l the morning. four o'clock. 0h, m the morning. four o'clock. oh, my gosh. _ the morning. four o'clock. oh, my gosh, ibrahima. _ the morning. four o'clock. oh, my gosh, ibrahima. big day. very big number. did my gosh, ibrahima. big day. very big number.— my gosh, ibrahima. big day. very big number. did i hear it is somebody's _ very big number. did i hear it is somebody's birthday - very big number. did i hear it| is somebody's birthday today? whose — is somebody's birthday today? whose birthday is it? marieme and ndeye. do you know what? we've _ and ndeye. do you know what? we've got— and ndeye. do you know what? we've got a big surprise for them — we've got a big surprise for them. should we find out what it is _ them. should we find out what it is she!!— them. should we find out what it is. shall we?— it is. shall we? happy birthday! _ it is. shall we? happy birthday! hi _ it is. shall we? happy| birthday! hi everyone! it is. shall we? happy- birthday! hi everyone! i'm so excited too! _ birthday! hi everyone! i'm so excited too! how _ birthday! hi everyone! i'm so excited too! how are - birthday! hi everyone! i'm so excited too! how are you - birthday! hi everyone! i'm so i excited too! how are you girls? today— excited too! how are you girls? today is — excited too! how are you girls? today is a — excited too! how are you girls? today is a big _ excited too! how are you girls? today is a big milestone - excited too! how are you girls? today is a big milestone for- today is a big milestone for one and ndeye. they are hitting seven. it is huge for all of us. it is a celebration of where we are with them, really. we have organised today some special things.— special things. close your eyes - - — special things. close your eyes... one _ special things. close your eyes... one of— special things. close your eyes... one of our - special things. close your i eyes... one of our members special things. close your - eyes... one of our members of staff has _ eyes... one of our members of staff has made _ eyes... one of our members of staff has made a _ eyes... one of our members of staff has made a most - eyes... one of our members of| staff has made a most beautiful cake. dad's coming and we have just got a little bit of a celebration going on. happy birthday dear _ celebration going on. happy birthday dear marieme - celebration going on. happy birthday dear marieme and l birthday dear marieme and ndeys _ birthday dear marieme and ndeye. happy— birthday dear marieme and ndeye. happy birthday - birthday dear marieme and ndeye. happy birthday to i birthday dear marieme and - ndeye. happy birthday to you. this is a birthday ibrahima has been told his daughters would never reach. seven years ago he was living in senegal�*s capital dakar. the family was expecting another baby. life is about to change forever.— another baby. life is about to change forever. they took baby in the blanket _ change forever. they took baby in the blanket and _ change forever. they took baby in the blanket and they - change forever. they took baby in the blanket and they went i in the blanket and they went out. i asked in the blanket and they went out. iasked if in the blanket and they went out. i asked if everything was ok they told me yeah, it is 0k they told me yeah, it is fine. they asked me if i was aware of they were twins. i said no, we were not expecting twins. they told me but there is a problem. they told mejust to let you know that they are conjoined. not for you, this is not going to happen to you. you are completely... knocked down. doctors didn't expect the girls to live more than a few days. i was preparing myselfjust to lose them very quickly. not to let them walk alone through this journey. let them walk alone through thisjourney. the let them walk alone through this journey. the two weeks passed, the four weeks passed. we started building hope. building hope and then we could see very clearly that we are going to deal with warriors. they hung on to life, they hung on to life. i have been searching all over the world, contacting many hospitals, even begging for appointment. that is how i heard about the hospital so i sent to the medical records of the girls and they told me there was a possibility to do the separation. we came here in 2017. i came with a lot of hope, maybe too much. maybe too much hope at the time. just said great — much hope at the time. just said great ormond - much hope at the time. just said great ormond street hospitalfound said great ormond street hospital found that marieme�*s heart was too weak to survive the operation. if heart was too weak to survive the operation.— the operation. if you look at her and her _ the operation. if you look at her and her sweating, - the operation. if you look at her and her sweating, it - the operation. if you look at her and her sweating, it is l herand her sweating, it is because _ herand her sweating, it is because of her leaky valve and the fact— because of her leaky valve and the fact that her heart is struggling compared to that of her sister. and the difficulty is that— her sister. and the difficulty is that were we to try and separate _ is that were we to try and separate them, she would not survive — separate them, she would not survive separation. at separate them, she would not survive separation.— separate them, she would not survive separation. at the time there were _ survive separation. at the time there were fears _ survive separation. at the time there were fears that _ survive separation. at the time there were fears that without l there were fears that without operating neither of the girls may live the long separation might give ndeye a better chance of survival. ibrahima was left with an impossible decision. at this point it is just killing one of my child for another. just killing one of my child foranother. is just killing one of my child for another. is there something i can do. i for another. is there something i can do. .., �* for another. is there something icando. �* ., ., i, i can do. i can't allow myself to decide — i can do. i can't allow myself to decide who _ i can do. i can't allow myself to decide who will— i can do. i can't allow myself to decide who will live, - i can do. i can't allow myself to decide who will live, who | to decide who will live, who will die now. it to decide who will live, who will die now.— will die now. it would -- it was agreed _ will die now. it would -- it was agreed that _ will die now. it would -- it was agreed that they - will die now. it would -- it| was agreed that they would will die now. it would -- it - was agreed that they would stay conjoined and remain in the uk for care. the goal�*s mum returned to senegal to look after their other children while ibrahima, marieme and ndeye made cardiff their new home. there ready, steady, go! without —— despite all expectations, day by day the girls grew stronger. i expectations, day by day the girls grew stronger.- girls grew stronger. i never exneeted — girls grew stronger. i never expected one _ girls grew stronger. i never expected one so _ girls grew stronger. i never expected one so i - girls grew stronger. i never expected one so i have - girls grew stronger. i never| expected one so i have one, two, three. it is showing whatever the complexity of your task, you can make it. this now aged seven, marieme and ndeye continue to defy the odds. this continue to defy the odds. as the twins grow older and their needs change, ibrahima is devoting his life to their care. ., , devoting his life to their care. ., , ., , devoting his life to their care. ., , ., , ., devoting his life to their care. ., , ., ., care. not being able to go back home again. — care. not being able to go back home again, it _ care. not being able to go back home again, it was _ care. not being able to go back home again, it was very, - care. not being able to go back home again, it was very, very l home again, it was very, very difficult because of your family back home, you had your job back home, you lose your home because you are no longer paying, you lose yourjob because you are no longer able to be there. at the time i was a managing director and then just to switch to the unknown. i didn't think to myselfjust follow my heart. —— just say, ok, this is my parental responsibility, to make sure to have somebody here for them, that will be your life purpose. the girls' health needs to be monitored regularly stop today the family is getting ready for another hospital checkup. truth? another hospital checkup. why are we going _ another hospital checkup. why are we going to _ another hospital checkup. why are we going to hospital? another hospital checkup. whyl are we going to hospital? going to see if you — are we going to hospital? going to see if you have _ are we going to hospital? going to see if you have grown - are we going to hospital? going to see if you have grown a - are we going to hospital? going to see if you have grown a lot. l to see if you have grown a lot. 0k, ready? to see if you have grown a lot. 0k. ready?— to see if you have grown a lot. ok, ready?- ready! - to see if you have grown a lot. | ok, ready?- ready! let's ok, ready? yeah! ready! let's to. how many times you reckon you've — how many times you reckon you've been _ how many times you reckon you've been here? - how many times you reckon you've been here? i- how many times you reckon you've been here?— how many times you reckon you've been here? i don't think i can tell. _ you've been here? i don't think i can tell, between _ you've been here? i don't think i can tell, between the - i can tell, between the emergency, admissions, routine appointments, checks, scans... yeah, a lot of time. many many times. ~ ., ., ., ., . times. who am i going to check first? you _ times. who am i going to check first? you said _ times. who am i going to check first? you said it _ times. who am i going to check first? you said it was _ times. who am i going to check first? you said it was ok, - times. who am i going to check first? you said it was ok, you! | first? you said it was ok, you! how— first? you said it was ok, you! howdid— first? you said it was ok, you! howdid i— first? you said it was ok, you! how did i guess? ! ican hear i can hear it. i can hear it is really— i can hear it. i can hear it is really strong. that is good, isn't — really strong. that is good, isn't it? _ really strong. that is good, isn't it? shall we listen to yours _ isn't it? shall we listen to yours as— isn't it? shall we listen to yours as well? yours is speciab _ yours as well? yours is special. yours has an extra noise _ special. yours has an extra noise i_ special. yours has an extra noise. i think i was the first paediatrician who met ibrahima and the — paediatrician who met ibrahima and the girls when they arrived in cardiff _ and the girls when they arrived in cardiff. a bit like everyone it is— in cardiff. a bit like everyone it is a — in cardiff. a bit like everyone it is a bit— in cardiff. a bit like everyone it is a bit of a novel excitement and then a bit of realisation that this is something i've only ever read about— something i've only ever read about in— something i've only ever read about in textbooks and here are two gorgeous girls and a worried _ two gorgeous girls and a worried father who has been thrown — worried father who has been thrown into a world of science, medicine, _ thrown into a world of science, medicine, hospitals that he wasn't _ medicine, hospitals that he wasn't expecting and none of us were _ wasn't expecting and none of us were expecting. i think we were expecting. ! think we really— were expecting. i think we really have learned together. they've — really have learned together. they've got one pair of legs between them and one pelvis. moving — between them and one pelvis. moving up through their abdomen they have — moving up through their abdomen they have a lot of different organs _ they have a lot of different organs, so we have bowel, urinary— organs, so we have bowel, urinary system, and then we move — urinary system, and then we move up— urinary system, and then we move up and they have two totatty _ move up and they have two totally different spinal cords with— totally different spinal cords with all— totally different spinal cords with all their nerves and yet somehow they completely co—ordinate and they don't have to tell— co—ordinate and they don't have to tell each other how to move an arm — to tell each other how to move an arm or— to tell each other how to move an arm or how to move a leg. it just— an arm or how to move a leg. it just works _ an arm or how to move a leg. it just works. and again, two separate _ just works. and again, two separate hearts but we know they— separate hearts but we know they are _ separate hearts but we know they are linked and they can't survive — they are linked and they can't survive on _ they are linked and they can't survive on their own.- they are linked and they can't survive on their own. when we first met _ survive on their own. when we first met them, _ survive on their own. when we first met them, you _ survive on their own. when we first met them, you know, - survive on their own. when we | first met them, you know, they were _ first met them, you know, they were babies _ first met them, you know, they were babies. there _ first met them, you know, they were babies. there was - first met them, you know, they were babies. there was a - first met them, you know, they were babies. there was a lot. first met them, you know, they were babies. there was a lot ofj were babies. there was a lot of uncertainty, _ were babies. there was a lot of uncertainty, could _ were babies. there was a lot of uncertainty, could they - were babies. there was a lot of uncertainty, could they be - uncertainty, could they be separated _ uncertainty, could they be separated or— uncertainty, could they be separated or what - uncertainty, could they be separated or what might. uncertainty, could they be - separated or what might happen? and having — separated or what might happen? and having worked _ separated or what might happen? and having worked through - separated or what might happen? and having worked through those| and having worked through those very. _ and having worked through those very. very. — and having worked through those very. very. you _ and having worked through those very, very, you know, _ and having worked through those very, very, you know, difficult. very, very, you know, difficult conversations. _ now we've had two years we have hardly— now we've had two years we have hardly seen — now we've had two years we have hardly seen in— now we've had two years we have hardly seen in hospital. _ now we've had two years we have hardly seen in hospital. i- hardly seen in hospital. think we had no doubt hardly seen in hospital'- think we had no doubt their life think we had no doubt their tife was— think we had no doubt their life was going to be complex. i think— life was going to be complex. i think we — life was going to be complex. i think we still have serious risks— think we still have serious risks of— think we still have serious risks of infection and serious risks— risks of infection and serious risks to _ risks of infection and serious risks to their hearts. that is probably— risks to their hearts. that is probably the area where they are going to struggle. if probably the area where they are going to struggle.- are going to struggle. if you develop an _ are going to struggle. if you develop an infection - are going to struggle. if you develop an infection in - are going to struggle. if you develop an infection in your| develop an infection in your bladder— develop an infection in your bladder or— develop an infection in your bladder or your— develop an infection in your bladder or your kidneys - develop an infection in yourj bladder or your kidneys and develop an infection in your- bladder or your kidneys and you can't _ bladder or your kidneys and you can't get — bladder or your kidneys and you can't get on _ bladder or your kidneys and you can't get on top _ bladder or your kidneys and you can't get on top of _ bladder or your kidneys and you can't get on top of it _ bladder or your kidneys and you can't get on top of it with - can't get on top of it with antibiotics, _ can't get on top of it with antibiotics, there - can't get on top of it with antibiotics, there is - can't get on top of it with antibiotics, there is a - can't get on top of it with| antibiotics, there is a risk can't get on top of it with i antibiotics, there is a risk of that— antibiotics, there is a risk of that evolving _ antibiotics, there is a risk of that evolving into _ antibiotics, there is a risk of that evolving into sepsis - antibiotics, there is a risk of| that evolving into sepsis and so that — that evolving into sepsis and so that is— that evolving into sepsis and so that is a _ that evolving into sepsis and so that is a real _ that evolving into sepsis and so that is a real risk - that evolving into sepsis and so that is a real risk for - so that is a real risk for them _ so that is a real risk for them and _ so that is a real risk for them. and also - so that is a real risk for them. and also heart l so that is a real risk for - them. and also heart failure. how— them. and also heart failure. how are _ them. and also heart failure. how are you _ them. and also heart failure. how are you getting - them. and also heart failure. how are you getting on- them. and also heart failure. how are you getting on withl how are you getting on with drinking _ how are you getting on with drinking these days? | how are you getting on with drinking these days? i thought ou had a drinking these days? i thought you had a really _ drinking these days? i thought you had a really smart - drinking these days? i thought| you had a really smart drinking bottle — you had a really smart drinking bottle it — you had a really smart drinking bottle it is _ you had a really smart drinking bottle. it is being _ you had a really smart drinking bottle. it is being aware - you had a really smart drinking bottle. it is being aware of- bottle. it is being aware of what — bottle. it is being aware of what is _ bottle. it is being aware of what is happening - bottle. it is being aware of what is happening but - bottle. it is being aware of what is happening but a i bottle. it is being aware of- what is happening but a balance of being — what is happening but a balance of being prepared, _ what is happening but a balance of being prepared, being - of being prepared, being realistic— of being prepared, being realistic but _ of being prepared, being realistic but not - of being prepared, being realistic but not talking i of being prepared, being - realistic but not talking about it all— realistic but not talking about it at! the _ realistic but not talking about it all the time. _ realistic but not talking about it all the time.— it all the time. when you are told since — it all the time. when you are told since the _ it all the time. when you are told since the beginning - it all the time. when you are l told since the beginning there is no future, you live for the present. and any time any minute, any second i can receive a call from school, something very bad. would happen. but as i say too many people, we are going to live. how long? i don't know. i don't want to know right now. ijust concentrate on the present and making everyday surprise. in celebrating life. one of my greatest hope this has been to see the girls go to mainstream school. it is a way for me to show that they are part of society, they are part of society. society, they are part of society-— society, they are part of socie . ., , , ., society. dad applied for them to come to — society. dad applied for them to come to nursery _ society. dad applied for them to come to nursery here - society. dad applied for them i to come to nursery here because we were — to come to nursery here because we were local. we were frightened and we were scared that we — frightened and we were scared that we would get it wrong, but we knew — that we would get it wrong, but we knew that we could build a good — we knew that we could build a good relationship with dad and that if— good relationship with dad and that if we can build a relationship with dad that we could — relationship with dad that we could make it work.- could make it work. happy birthday. _ could make it work. happy birthday, ndeye! - could make it work. happy birthday, ndeye! can - could make it work. happy birthday, ndeye! can the i could make it work. happy . birthday, ndeye! can the girls come and _ birthday, ndeye! can the girls come and play _ birthday, ndeye! can the girls come and play on _ birthday, ndeye! can the girls come and play on the - birthday, ndeye! can the girls come and play on the puppet| come and play on the puppet show? — come and play on the puppet show? , ., come and play on the puppet show? , . ., ., show? they are part of the year 2 class, show? they are part of the year 2 class. just _ show? they are part of the year 2 class, just like _ show? they are part of the year 2 class, just like anybody - show? they are part of the year 2 class, just like anybody else i 2 class, just like anybody else but they— 2 class, just like anybody else but they also _ 2 class, just like anybody else but they also have _ 2 class, just like anybody else but they also have two - 2 class, just like anybody else but they also have two people who help _ but they also have two people who help them. _ but they also have two people who help them. this - but they also have two people who help them. this shall- but they also have two people who help them. this shall we| but they also have two people i who help them. this shall we go out to— who help them. this shall we go out to play. _ who help them. this shall we go out to play, girls? _ who help them. this shall we go out to play, girls? ilitho- who help them. this shall we go out to play. girls?— out to play, girls? who are we aroin to out to play, girls? who are we going to play _ we are finding a happy birthday spider— we are finding a happy birthday spider for you. we are finding a happy birthday spiderforyou. for we are finding a happy birthday spider for yom— spider for you. for me? please don't. a spider! _ spider for you. for me? please don't. a spider! i _ spider for you. for me? please don't. a spider! i see _ spider for you. for me? please don't. a spider! i see it! - spider for you. for me? please don't. a spider! i see it! this . don't. a spider! i see it! this is what i _ don't. a spider! i see it! this is what i wanted. _ don't. a spider! i see it! this is what i wanted. for - don't. a spider! i see it! this is what i wanted. for them l don't. a spider! i see it! this| is what i wanted. for them to have a normal life. to see kids, to play with them, to laugh with them, to make friends, to develop as individuals. they don't have to hide from anybody. this what colours are you going to do your giraffe?— colours are you going to do your giraffe? local seven they have separate _ your giraffe? local seven they have separate friends. - your giraffe? local seven they have separate friends. if- your giraffe? local seven they have separate friends. if you i have separate friends. if you said — have separate friends. if you said to — have separate friends. if you said to them who are your friends _ said to them who are your friends they would give you a long — friends they would give you a long list _ friends they would give you a long list of people. the wonderful thing about children is they— wonderful thing about children is they don't see disability, they— is they don't see disability, they only see their friend. they— they only see their friend. they are _ they only see their friend. they are both so pretty. i like cats to and they like cats. they really love each other. and — they really love each other. and we _ they really love each other. and we always _ they really love each other. and we always do _ they really love each other. and we always do girl- they really love each other. | and we always do girl power with— and we always do girl power with them. girl power! i and we always do girl power with them. girl power!- with them. girl power! i like our with them. girl power! i like your glasses. _ with them. girl power! i like your glasses, ndeye. - with them. girl power! i like your glasses, ndeye. they l with them. girl power! i like i your glasses, ndeye. they are lucky to be part of this community. i couldn't expect better. i couldn't. clothing is one of the things i'm struggling a lot. ~ , ., ., lot. when i first heard about the rirls lot. when i first heard about the girls i — lot. when i first heard about the girls i thought _ lot. when i first heard about the girls i thought what - lot. when i first heard about the girls i thought what an l the girls i thought what an amazing _ the girls i thought what an amazing project— the girls i thought what an amazing project to - the girls i thought what an amazing project to be - the girls i thought what an - amazing project to be involved in. amazing project to be involved in to — amazing project to be involved in to be — amazing project to be involved in. to be able _ amazing project to be involved in. to be able to— amazing project to be involved in. to be able to give - amazing project to be involved in. to be able to give them - in. to be able to give them something _ in. to be able to give them something that _ in. to be able to give them something that they- in. to be able to give them something that they can't i something that they can't normativ— something that they can't normally get, _ something that they can't normally get, go - something that they can't normally get, go into - something that they can't normally get, go into a l something that they can't - normally get, go into a store, pick— normally get, go into a store, pick clothes _ normally get, go into a store, pick clothes and _ normally get, go into a store, pick clothes and that - pick clothes and that excitement - pick clothes and that excitement and - pick clothes and that - excitement and everything pick clothes and that _ excitement and everything that brings— excitement and everything that brings with _ excitement and everything that brings with it _ excitement and everything that brings with it. we _ excitement and everything that brings with it.— brings with it. we are going to make some — brings with it. we are going to make some clothes _ brings with it. we are going to make some clothes today - brings with it. we are going to make some clothes today for. make some clothes today for you — make some clothes today for you. what is your favourite thing? _ you. what is your favourite thin ? . ., you. what is your favourite thing?- unicorn? i you. what is your favourite - thing?- unicorn? what thing? unicorn! unicorn? what else? favourite _ thing? unicorn! unicorn? what else? favourite colours? - thing? unicorn! unicorn? what else? favourite colours? cats. | else? favourite colours? cats. i want pink- — else? favourite colours? cats. i want pink. and _ else? favourite colours? cats. i want pink. and i _ else? favourite colours? cats. i want pink. and i like - else? favourite colours? cats. i want pink. and i like red. - i want pink. and i like red. pinks, reds, cats and unicorns. fingers— pinks, reds, cats and unicorns. fingers crossed, let's see what we've _ fingers crossed, let's see what we've got _ fingers crossed, let's see what we've got. ready? they go! we will go — we've got. ready? they go! we will go and have a look!- will go and have a look! wow. lots of bright _ will go and have a look! wow. lots of bright colours! - will go and have a look! wow. | lots of bright colours! glasses and hats _ lots of bright colours! glasses and hats. ., ., ~' ., ., ~' lots of bright colours! glasses and hats._ lots - lots of bright colours! glasses and hats._ lots of| and hats. look! look. lots of colours- _ and hats. look! look. lots of colours. pretty _ and hats. look! look. lots of colours. pretty dress. - and hats. look! look. lots of colours. pretty dress. wow! i would like — colours. pretty dress. wow! i would like this _ colours. pretty dress. wow! i would like this one _ colours. pretty dress. wow! i would like this one and... - colours. pretty dress. wow! i| would like this one and... and this blue _ would like this one and... and this blue one? _ would like this one and... and this blue one? they _ would like this one and... and this blue one? they like - would like this one and... and this blue one? they like very i this blue one? they like very ink this blue one? they like very pink sparkly _ this blue one? they like very pink sparkly things. - this blue one? they like very| pink sparkly things. marieme this blue one? they like very i pink sparkly things. marieme is more simple colours. d0 pink sparkly things. marieme is more simple colours.— pink sparkly things. marieme is more simple colours. do we want same or do _ more simple colours. do we want same or do we — more simple colours. do we want same or do we want _ more simple colours. do we want same or do we want different? i same or do we want different? different! _ same or do we want different? different! you want different, 0k. different! you want different, ok you — different! you want different, ok. you want to go now, you want _ ok. you want to go now, you want to— ok. you want to go now, you want to go— ok. you want to go now, you want to go back to school? jee2~ — this is everything we've selected. dad was explaining how temperatures are an issue for them — how temperatures are an issue for them both and marieme is always— for them both and marieme is always warm and the spires fight — always warm and the spires fight a _ always warm and the spires fight a lot and marieme is quite _ fight a lot and marieme is quite cold so i thought we could _ quite cold so i thought we could have a combination here of the — could have a combination here of the t—shirt and the sweatshirt together. i know dad is really interested in saying — i know dad is really interested in saying a big thank you to everybody who has been involved in supporting him as far as medically and education wise so ithink— medically and education wise so i think if— medically and education wise so i think if we can put on a bit ofa— i think if we can put on a bit of a show— i think if we can put on a bit of a show it will be a great fun— of a show it will be a great fun for— of a show it will be a great fun for everybody. one of the main goals of the girls is for them to stand and eventually walk.— eventually walk. they have a standin: eventually walk. they have a standing frame _ eventually walk. they have a standing frame because - eventually walk. they have a standing frame because if. standing frame because if you've been in a wheelchair all your life you are not used to being upright so we are training them to get some strength in their legs. what does everybody _ strength in their legs. what does everybody say - strength in their legs. what does everybody say when i strength in their legs. what i does everybody say when you strength in their legs. what does everybody say when you are in the _ does everybody say when you are in the standing pose? oh, does everybody say when you are in the standing pose?— in the standing pose? oh, you looktall! _ in the standing pose? oh, you looktall! hi, _ in the standing pose? oh, you look tall! hi, family. - in the standing pose? oh, you look tall! hi, family. it - in the standing pose? oh, you look tall! hi, family. it is - look tall! hi, family. it is nice to — look tall! hi, family. it is nice to meet _ look tall! hi, family. it is nice to meet you. - ready for takeoff, girls? i'm fl inc! ready for takeoff, girls? i'm flying! they _ ready for takeoff, girls? i'm flying! they are _ ready for takeoff, girls? i'm flying! they are doing - ready for takeoff, girls? i'm flying! they are doing really| flying! they are doing really well. it flying! they are doing really well- it is — flying! they are doing really well. it is a _ flying! they are doing really well. it is a different - well. it is a different sensation for them standing, different point of gravity but we go — different point of gravity but we go for little ones around the class _ we go for little ones around the class and the school and they— the class and the school and they get _ the class and the school and they get a chocolate diskette at the — they get a chocolate diskette at the end of it so that is some _ at the end of it so that is some encouragement. —— chocolate _ some encouragement. —— chocolate biscuit. our target for standing in the frame — our target for standing in the frame is _ our target for standing in the frame is one hour daily at the moment— frame is one hour daily at the moment so we are managing about 20 minutes. it will probably take — 20 minutes. it will probably take a — 20 minutes. it will probably take a long time and this is just— take a long time and this is just the _ take a long time and this is just the start of everything but i — just the start of everything but i know dad is particularly keen — but i know dad is particularly keen he _ but i know dad is particularly keen. he really wants to see it for the — keen. he really wants to see it for the future. this you did really well today. this _ this you did really well today. this is— this you did really well today. this is showing you how resilient they are. they have achieved things that nobody ever thought they would. they are fighters and proving everybody wrong. i would not pretend that it is easy. it is not. but, ithink pretend that it is easy. it is not. but, i think everybody�*s playing their part, too. the plan for me now overnight to have a sort of respite. # this girl is on fire #_ # this girl is on fire # this— # this girl is on fire # this girl- # this girl is on fire # this girl is- # this girl is on fire # this girl is on- # this girl is on fire i # this girl is on fire! two carers stay over overnight to give ibrahima a chance to rest and to make sure the girls sleep safely. rest and to make sure the girls sleep safely-— sleep safely. well done. they are getting — sleep safely. well done. they are getting bigger— sleep safely. well done. they are getting bigger now, - sleep safely. well done. they are getting bigger now, they| are getting bigger now, they are getting bigger now, they are getting bigger now, they are getting more aware of how i'm feeling and what i'm feeling. what is the paracetamol name? feeling. what is the aracetamol name? . ,, paracetamol name? apple jack! we are communicating, - paracetamol name? apple jack! we are communicating, a - paracetamol name? apple jack! | we are communicating, a simple gesture, we are communicating. you see what its like. we're going to be ok, we're going be fine. there are no other word you can put an end, it is priceless. your tabletjust you can put an end, it is priceless. your tablet just ten minutes. it can be very conflicting but you feel lucky despite whatever the difficulty you have. they are bringing me suchjoy, such are bringing me suchjoy, such a joy are bringing me suchjoy, such a joy that i would never find anywhere. it is a huge privilege, a huge blessing to be their dad. ready for bed? this you have a good night now. you have a good ok? 0k, ok, good night. no peeking... eyes closed! remember from last time everything you picked? all right? _ everything you picked? all right? have a look. cat and unicorn, _ right? have a look. cat and unicorn, ourtie—dye hoodie. a nice _ unicorn, ourtie—dye hoodie. a nice t-shirt _ unicorn, ourtie—dye hoodie. a nice t—shirt and a nice jumper to keepm _ nice t—shirt and a nice jumper to keep... happy to help! nice t-shirt and a nice jumper to keep... happy to help! thank ou so to keep... happy to help! thank you so much- — to keep... happy to help! thank you so much. this _ to keep... happy to help! thank you so much. this is _ to keep... happy to help! thank you so much. this is so - you so much. this is so difficult to find outfits for them and it is giving me grey hair every day. wow!- hair every day. wow! unicorn and kitten- — hair every day. wow! unicorn and kitten. we _ hair every day. wow! unicorn and kitten. we have - hair every day. wow! unicorn and kitten. we have shorts, l and kitten. we have shorts, look! should _ and kitten. we have shorts, look! should we _ and kitten. we have shorts, look! should we go - and kitten. we have shorts, look! should we go ensurel look! should we go ensure everyone _ look! should we go ensure everyone your _ look! should we go ensure everyone your new- look! should we go ensure| everyone your new outfits? look! should we go ensure - everyone your new outfits? you are ready? _ cheering and applause. laughter. cheering and applause. lltugtiter-_ cheering and applause. laughter. . . , it would be very difficult for me to put in words what an amazing job you are doing for my family. i will try. first of all i remember the very first time i went in the hospital ward here in wales and it is doctor bodie who welcomed me. we have been through a very difficult moment sometimes. very difficult decisions. the passion that the medical staff had for these two. they did everything. so thank god. i couldn't find better, i couldn't find better, i couldn't find better, i couldn't find better. and after they have been stabilising the girls, their ambition for me was to see them going to school. i was very nervous, are they going to make it? are they going to make it? every day. you have been fighting for these girls. to have access at any facilities in the school and every time i'm telling back home how amazing you are and how dedicated you are to them, i don't even think that i have more dedication for these two then you all. you are making life easier for then you all. you are making life easierfor me, then you all. you are making life easier for me, every single day, every single moment. i don't think is no better occasion for me to express how grateful i am to you all, thank you so much for everything. i don't want to be seen as somebody who is giving lessons to people. ijust want somebody who is giving lessons to people. i just want to somebody who is giving lessons to people. ijust want to give, sort of give hope. any parents going through similar issues with their kids, never give up. never. celebrate life, celebrate life. hello there. let's see what the weather's got in store for the rest of the weekend. and here's the headline — for most of us, it's not looking too bad. some sunshine, but at times it will be cloudy. could be a few showers as well. now, recently there was a weather front across northern wales and northern england. it brought some damp weather on saturday. that should be mostly out of the way come sunday, as this ridge of high pressure tries to build across the uk. remnants of that weather front still visible in the morning across east anglia and the south—east, all the way to south—western parts of england. so quite cloudy, with some spits and spots of rain for a time. 16 in london. north of that, i think sunshine to greet us in the morning. through the morning into the afternoon those cumulus clouds will be developing and then eventually spreading, so i think it is going to be quite a cloudy afternoon for many of us during sunday. some showers as well, possible almost anywhere. your best bet for sunny skies is actually around coastal areas, almost anywhere, especially looking out to sea — blue skies. temperatures 20 in london, high teens further north. nothing spectacular, and actually similar temperatures and weather for the football in germany. ok, onto the forecasts now for monday. another weather front approaches from the west. this is going to bring thick cloud and some outbreaks of rain initially to northern ireland, to scotland, the irish sea, and then eventually that weather front this is going to bring thick cloud and some outbreaks of rain initially to northern ireland, to scotland, the irish sea, and then eventually that weather front will move eastwards across the country. so i think most of us are in at least for a little bit of rain. a short spell of rain on monday, but come the afternoon, skies all brighten across western areas of the uk, so there will be some clearer skies towards the end of monday. it may take time for that weather front to clear the east coast. and then the azores high still here on tuesday and indeed wednesday, but we're just on the edge of that high pressure and often on the edge of high pressures there's a lot of cloud. good chance of catching a shower, and that's pretty much what we've got on tuesday. i think your best bet for the dry, sunny weather will be further southwest on tuesday, for example in plymouth and in cardiff, whereas in the north west of england, the chance of a few showers. so here's the week at a glance. if you want really warm weather, it's not so great because temperatures are below the average. if you like cloudy, changeable, cool weather, well, it's perfect for you. bye— bye. live from washington, this is bbc news. president biden holds a series of election campaign fundraisers as he seeks to put a lacklustre debate performance behind him. uk labour leader sir keir starmer urges voters to give his party a clear mandate for change on the final weekend of the campaign. and iran will hold a run—off presidential vote after the country's lowest turnout in decades. president biden is ramping up his campaign efforts this weekend after a faltering performance in a televised debate against donald trump fuelled concern about his candidacy.

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