Transcripts For BBCNEWS Dont Write Us Off 20240709

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beit silvio berlusconi and jeffrey robinson who was a junior minister and his government. i don't really know what's wrong with hotels but perhaps the security arrangements make that impossible.— make that impossible. ob'ects. alwa s make that impossible. ob'ects. always have i make that impossible. ob'ects. always have to i make that impossible. ob'ects. always have to thinkh make that impossible. objects. always have to think about - make that impossible. objects. always have to think about the | always have to think about the objects. thank you both forjoining us tonight and giving up your sunday evening. don't forget to buy a paper in the morning. next, as the first ever audit of women with secondary breast cancer is about to begin, jeremy cooke speaks to patients about the importance of being counted, being heard and getting the best treatment to live as long as possible. i got my diagnosis two years ago. i had a tumour in my breast that was relatively large. are you 0k to step on the scales, please? yeah. alina is a young mum with a devastating diagnosis. i was automatically stage iv, metastases in my liver, spleen, spine, hips and sternum. secondary breast cancer. stage iv is classed as terminal, and to hear that language at the age of 32 with a ten—month—old is quite scary. come on, darling. with her husband on the speakerphone... hi, andy, can you hear me? hi, prof. 0k. ..alina is here to see breast cancer specialist, professor carlo palmieri. how are you feeling? i'm feeling great. i've got an appointment for some scan results. still got a level of anxiety for the appointment today. they also caught a new bone lesion in part of the pelvis on the left. right, 0k. secondary or metastatic breast cancer, both terms are used, is where the breast cancer has spread outside of the breast or the armpit, to other sites in the body, so common sites involved are bone, liver, lung, and sometimes the brain. while primary breast cancer has good survival rates, for about 30% of patients, it spreads to other parts of the body. it becomes secondary breast cancer. and that is a terminal condition. she has had her chest done. the clatterbridge cancer centre in liverpool is regarded as state—of—the—art. it looks like it's all disease related, doesn't it? - today, carlo and specialist nursejo francis... we need to get her in. ..are worried about ann, a long—term patient. hello? hello, ann, morning, carlo. hi, carlo! how are you? not too good round me stomach area. tenderness, pain and i have also got bruising. i want to get you up into the hospital, and i want to do a magnet scan of the liver. so we will see you up here later on today, 0k? 0k. ann's condition is deteriorating. can you request the mri liver, cos i can't do that? _ she is being called in for urgent treatment. we will catch up with her later. the aim of treatment is to prolong life, control symptoms, ensure quality of life, but unfortunately, in those circumstances, it's not possible to eradicate or cure the disease. you have to have one injection then l another one, two weeks later... l for alina, every checkup is about tracking the progress of her disease. highly specialised treatment can hold cancer in check, potentially for years. you'vejust been in. how is it? it wasn't totally positive, but it wasn't horrendous either. so it's a bit deflating when you have been getting positive results regularly for the last six months, but i will pull my socks up and give my head wobble and get on with it, really. the treatment here is among the best. but across the country, the breast cancer now charity says in a statement, "until now, patients with secondary breast cancer have felt overlooked and forgotten, at an already frightening time." the minute you say stage iv, everybody gives you a sympathetic look of, "oh, no". and for me, the stage isn't important. it's how i'm being treated and sometimes it does feel like, because it's not curative, people don't want to look at the other options of treatment. i have to be very proactive to feel like i'm getting the best care i possibly can and i'm not just a statistic. professor palmieri and jo francis are amazing, they do the absolute best for me. a big problem here is startlingly simple. until now, there has been no national record ofjust how many patients, mostly women, have secondary breast cancer. now, finally, the nhs will fund a scheme to get those stats in england and wales. we are planning your treatment. and it's important stuff. i think it is a game changer, because by knowing how many women are living with secondary breast cancer, we can design our services better. we know how to plan forward, how many specialist nurses we need, how to plan our chemo units. what doesn't change is that behind the numbers are people. ann needs all the help she can get. can i get you to pop . your fluids up for you? yeah. after her telephone consultation, she has been rushed in. this is effectively a&e for cancer. ann was first diagnosed with breast cancer in 2008. it spread, became secondary. she's had years of support. today, from phil, a clinical nurse specialist, a cns. it's a highly professional medical role, but there's more to it than that. phil knows that at this point, ann's needs are not simply medical. if there is anything i can get foryou, and i mean anything, a bacon buttie, a cream cake, a newspaper, just let me know. you're a star. clearly phil is special. rare, too, thought to be the only male cns in the country dedicated to secondary cancer. dedicated to patients like ann. i get up and come to work to fight for people's mums, people's sisters, people's wives, people's daughters and i have a mum, a wife, a sister, a daughter and if they are not worth getting up and fighting for, then i don't know what is. you are a passionate man. oh, i love what we do here. yeah, very much so. decided to give me chemotherapy... ann is poorly. she has been admitted to the ward. after so many years living with cancer, today is tough. it's getting worse. you know, symptoms are getting worse, no doubt about it. my breathing and things like that. stay positive until the time comes when all these lovely people can't do anything more for me. i do feel at peace, i do feel i have accepted things. the clatterbridge service aims to make things as normal as possible, for as long as possible, and so there is this. cancer treatment out on the road and into people's homes. hiya, karen, you 0k? good morning. today, nurse sarah is out visiting karen. any chest pains? no chest pains at all. shortness of breath? no. it's very painful. aw. karen's case is complicated. as well as secondary breast cancer, she's also got skin cancer. is it very painful now, karen, is it? yes. difficult to live with, because i can't move very quick. yeah. there's no option for me to give up. i've got to keep fighting. of course. are you ready, karen? ready. sharp scratch coming. well done. there are now 135 patients registered for this service. much better than having to be hooked up to a machine. definitely. used to be about two hours, didn't it? a number that has grown over the pandemic, with fewer hospital appointments. i much prefer to be at home having things done. you actually feel more in control. we get to know our patients really well. what i like, there's a lot of positivity in this room. definitely. i've got to be positive, because the day you stop being positive, you are on a slippery slope. so i have to remain positive. that's the treatment done. innovative treatment, and again, this determination that even with a terminal diagnosis, there can be life. until next time, three weeks. good—quality life. yeah, we do need to be heard. i don't want to be put into the shadows, i want to get out there and talk about it and say, "look, yeah, 0k, i've got cancer, "it's a difficult situation that i'm in, but we need to talk about it, "because my life is not over." i keep my fingers crossed really, really tightly, because i'd like to see my daughter get married and i'd like to see herfirst baby. she is coming in face—to—face. is she? yeah. back in the hospital, it's clinic day, and it's busy. the new drive to collect better information on patients with secondary breast cancer is designed to target support where it's needed. have a seat. to people like maureen. your lungs are clear. your adrenal glands- and kidneys are all fine. 0h, brilliant. that's all i wanted to know. i'm used to needles, 86 treatments i've had, ,, , . . if i had not have gone for my scan, my mammogram, i would not be here. you are our miracle. did you hear that? jo just said you are the miracle. maureen laughs. at home, maureen is living proof that even with her kind of secondary breast cancer... we are a bit early, is that 0k, maureen? yeah. ..there can be good days, months, even years. "the boy sighed. "'so, young man,' began the doctor in a singsong tone..." _ maureen is both nanny and effectively mum to her granddaughter, p°ppy--- "there are 192 questions..." ..whose own mother died tragically young. she made me better with my cuddles, do you know that? did she? a bit of cuddle training? when i used to come back from getting the treatment... they are making me better, didn't they? getting maureen's cancer under control has changed her life, of course. but also poppy's. very moving to see you and poppy, very moving, because you have given her everything, and if there is no you, she is missing so much. i know. i know, that's it, isn't it? so... so i've got to live another ten years or more, haven't i? what has it meant to you to be here for her formative years? oh, so much. so much. the stakes here could not be higher. most patients with secondary breast cancer are women. many are mothers. all right? yeah, i'm fine. you sure? yeah. alina's daughter is three and every second they get to spend together is precious. she has got another two years until she goes to school, but i am looking forward to seeing her go into that. and i hope i can see her go to that. sorry, can ijust have a moment? it's one of the hardest things, is talking about... and the worry that i might not see her. i'm confident i will. and i will get there. but there is always that sliver of worry... ..that you might not see that big milestone for her. you might not be able to take her through all of her milestones as a young lady and my husband might have to do that. with professor palmieri in my team, i'm sure i'll see it. the national audit is aimed at getting better, more targeted treatment to patients like ann. we want to get some more bloods off you. the long—term hope, of course, is a cure, but for now, for the next generation, it's about making secondary breast cancer something that some women can live with, rather than die of. from somewhere, i've got this strength and i don't know where. i always say i have two guardian angels, my mum on one side, and my dad on another. and i do believe that they walk with me. hello. after the morning woke up last week get ready for a chillier commute to start this week off. that which is why the in single figures as we start monday. there will be up in double figures across some parts of western scotland however that is because there will be more clout and outbreaks of rain to start the day. which will become persistent around the highlands and western aisles, around that early mist and fog patch in good sunny spells, bit hazy in places as that weather front works its way across. extending some patchy rain to eastern and southern scotland potentially to far north of england but many will be dry. still a bit of a breeze blowing across the north, nowhere near as strong as strong as the weekend, later went to the south and a hazy sunshine should still feel pleasantly warm, hides of 16 or 17. not million miles away is the cold air and even with the sunshine. that cold air will try to have a fight back this week but will be too little on and we will see cloud in a bricks of rain extend across northern and eastern scotland and eastern england as we go up to tuesday. chilly start on tuesday across the south. see you later. welcome to newsday. the headlines. inside the world of kim jon—un. a former official tells us they will never give up their nuclear powers. denuclearisation will never be achieved. north korea's nuclear deterrent is tied to kim jong—un's survival. taiwan says it will not bow to beijing's pressure to reunite with china. warnings in the uk that factories could be shutdown as high energy costs bite.

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