Transcripts For ALJAZ From Russia With No Immunity 20240712

Transcripts For ALJAZ From Russia With No Immunity 20240712

To the main Economic Resource which is of course oil we bring you the stories in development is that a rapidly changing the world we live in the president s promise america 1st policy trigger to try war that morphed into a technological war counting the cost on al jazeera. Multiple sclerosis is a debilitating and cruel disorder with no known cure your Blood Pressure is also higher now a russian doctor is providing hope performing stem cell transplants on foundations of patients people are traveling from as far away as australia biggest fear right now is the m. S. Progressing may getting another episode of my results in further disability god knows what that disability could bring. Thats the scariest thing. But the 19 pandemic is throwing up unexpected challenges theres really nothing. Scheduled. 101 east follows 2 men risking their lives for treatment on the other side of the world. Once upon a time before our world was turned upside down parents like money and nick taria deimos took their kids to play sports on the weekend. Calmer than it was before we shunned handshakes and hugs. When we could hold our grandchildren close will. You training here are you training him up down there. Are you going to play good team 2. Nick practically grew up here his dad was one of the Club Founders and now he and his wife. Nick taria come to watch they 2 sons trying. To kill easy take a brother in the future what you want to ensure your old. Are you. Pretty much everyone is related in this. Particular. Brother george of his dad. Right tony. So we all grew up together would school together. Side. By sickly parents from the same village. Theyre all desperately worried about not 2 years ago when he was 35 he was diagnosed with relapsing remitting multiple sclerosis. Nicks diagnosis turned his world upside down im just roommate and 3 year old just one brother in law washed down just knew there was something wrong when they so told us youve got a mess. And salaam bells in the hand going and you just think any self is no cure for this even though just going to be left in a wheelchair i remember screaming so. Saw at the front of the box. Since then nicks been plagued by fatigue migraines blurred vision pain and numbness in his legs and dread about what still lives next door to go to call her brother see her in a weeks time hes supposed to fly so moscow for a stem cell transplant a treatment that halts the progression of the m. S. In about 80 to 90 percent of cases like nicks going to. Go through various rather large rough there over there that only one friday. It involves chemotherapy which will suppress his own new system amis is an auto immune disease which means nicks immune system doesnt just defend him from infections it attacks healthy cells. No one knows why it happens but m. S. Damages the protective coating on nerves in your brain and spine causing lesions nick has more than 50 these distorted messages from the brain to the rest of the body sometimes leading to severe disability. Theres no known cure. For stem cell treatment blood to stem cells are removed from your bone marrow day in a high dose of chemotherapy is used to knock out your immune system which is the source of the m. E. s and then your stem cells are real and fused rebooting your immune system although the treatment doesnt claim to reverse the damage done by m. S. Some people get lucky. Right really. To be your. Stem cell transplants known as h s c. T. Have been very successful in Clinical Trials especially for young patients with relapsing remitting and mass. But the treatment isnt widely available anywhere in the world. And although nicks current year old just supports his plans to seek treatment abroad he says most dismissive to many of i guess my previous a mass neurologists about i just say today they were all against it some of the feedback i was getting was not its not proven its still being tested dont do it its going to kill you this is tech for deron it was offered the standard 1st line of treatment for his a mace drugs its a can for relaxing and that this is the but obviously than what lesions continued. In australia Clinical Trials to standard cell transplants only accept people who failed to respond to multiple drug treatments nicks been told he doesnt qualify because he hasnt tried and failed at least one other drug i guess. Were just frustrated frustrated that theyve been doing a trial in australia since 2012 and not allow a miss patients to jump onto this and reap the benefits of it and force us to go abroad for treatment. For the 1st. While nicks getting ready for his trip to moscow i learned that there are already the forests trails with a mass killing stem cell transplants at the i am not some of hospital. And i. Was. Around a 1000 foreign patients have received stem cell treatments here each around 80000. 00. Michael jones from brisk been is the most recent arrival here garcia on the 10th of march the day before the World Health Organization declared covered 19 a pandemic so tell me about coronavirus how did you feel heading over to russia when it was already around in quite a particularly or was it that there were and i tried this and i recall it shout it out west where star i headed out of the air travel right back significantly worse and i dont right now. Can we just leave the ferry just this time michaels treatment will last another month and like nick he feels this is his only hope of stopping his email. Worldwide hearing a stranger and you find. Nick and nick taria a deuce of a moscow in 3 days time theyve already started packing but they woke up to some worrying news have you heard that theyre closing the borders for straining russia. And i also think theyre discovering that there are no certainties as the pandemic becomes real at this stage everything is up in limbo just waiting to the hospital to august break in advance of next steps. The hospital in moscow finally contacts next to confirm the bad news and the stage said lets delay but well find out a date. When situation is stable again it will work normally we will accept you we now thirst group of patients when restrictions will be cancelled. Is that ok quite an emotional roller coaster these might. Stop and heads about to explode so close to getting this thing done now just looks like so far away and. Whats your biggest fear right now. Because fear right now is the m. S. Progressing me getting another episode that may result in further disability god knows what that disability could bring. Thats a scary scene. But what helps me. I cant follow next to russia anymore. But im still keen to follow michaels progress as best i can from my home in melbourne so how you feeling today what stage of the treatment to us. And there. Are. Going to be no. Nothing not manage. This is dr dennis figuring. Its bill many years and there are russian hematology just who is revealed by the thousands of images suffer as hes treated obviously our view. Hes the reason michaels an oscar oh. Oh. I hear you and i see you im sorry i cannot be there to meet you in person or it to me to personally be a cool and angry you to answer all your questions sometimes in the media this treatment is described as a miracle cure do you think that maybe some patients come to you and the expectations are too high they think that it can cure them multiple sclerosis all bushels of this this is not the 100 percent successful treatment there last 30 stick around fortunately certain times disease claims bear birth with the road or those embarrass. If i could respond dish of the results that you were just this treatment is much more effective. So i prepare for stem cell transplantation the last part of the process it doesnt sound to it i see from the paper calls for me to stop doing this to be on us. Even in russia there is resistance to stem cell transplants as a 1st line of treatment for m. S. Patients its only available free to a handful of russians in rolled in Clinical Trials your Blood Pressure is also high and. While. Problems dr fenner rinko is frustrated by how difficult it is to win over the medical establishment well done well yeah why do you think everywhere in the world this is still considered an experimental treatment what is the resistance let go of current generation between specially as big goals as it is in your origin girls at the human toll or to go also. Maybe pharmaceutical business because you know this week after dissolved all the minus trial reach go where transplant patients in those numbers this is many different broke businesses are merely can in your opinion trial by ambush last year so that there is bundys on this much more affair. For the day after michael stem cells are really infused is a special ceremony to mark the rebirth of his immune system. Quad amado. He pours out the dry ice used to store his stem cells before going into isolation where hes safe from and for. Action while his immune system recovers all. You want. I mean dave. Got a job here. Truck so my Blood Council bustles the things. Why he insists on ms is officially dead as a doornail. When michael arrived in moscow it was very few reported cases of coronavirus in russia and its government didnt seem too concerned. That strange now since michaels gone into isolation moscow has gone into lockdown whats the news whats happening in our slots. In or out of russia at the moment so this is literally no way that you can get on a plane and get back yet at the moment theres really nothing theres not one single flight scheduled you know and what do you know about what will happen when your treatment ends and you stay there the problem now is that this is what he will start taking on coronavirus special switch or a group with no i mean system is a scary situation. Maybe a hotel in moscow somewhere its all really stuff you know i could deal with the kind of the 19 issue on a flight because that thats a tangible living in a hotel unprotected for a month in a foreign country totally different paradigm. You know what to. Actually do. Anything else. You take care michel. Thanks once. You got a bit of. Hair loss going on there it seems have an awful lot of hair loss going on. I havent shaved thats just career. So the last time i spoke to you you were a bit strange because you werent sure what was going to happen when the treatment finished. You got some other options or. So whats happened where you organized approach at. The. Start dont. Know dont go further in michaels time in isolation is due to end today. Dr fenner nko keeps a close eye out for any sign that his immune system isnt recovering as fast as it should i was my blood to that. Moment. Just 2 days ago michaels immune system bottomed out and he needed a blood transfusion if it hadnt balanced back it wouldnt have been safe to travel. And you. Had to go in just 3 more days michael will be heading home. So a good. Ride back from london hes got a ticket book to perth and then on to brisbane and the fact that you reckon you can be home by next weekend is is amazing its amazing yeah yeah it really is nice im lucky that ive got a farm as we get most of there is no bitch in fact the flight to london is costing michael 20000. 00 well nice to see you again are nice to see you smiling michael. Michaels wife has been trying to move heaven and earth to get safely home dont doubt it have a drink you wont shes organized the charter flights and special permissions from michael to bypass quarantine and you look really good. You really do you look like youre ready to rock n roll. I cant wait not long now. Yeah. You know what you do the same for me. I love hearing i absolutely love you in you know what i like i said go to the end of the earth. Its right hold it together well talk about this light a mission a Mission Impossible going and we can cry in the end ok. All right i love you start strong. By. Sometimes it really hard to sustain a really strong. You know behind saying. Ill let you. Know your last 3 nor but there were issues just here. Although it was there because the governor. Ok just said i had a video of a doctor if it went really well. You know how and before i knew i view. You know all your. All those 1st phone. You lose your life. Treatment on prototypical for the morning. Fredricka. He can do. At least michaels not alone hes traveling to perth with jason to another a struggling and patient of dr feder encodes. For right here. Soft power. The focus until now has been on finding a way out of russia. There is a city or a. Record. Of a god but michaels wife rachel knows that theres nothing remotely saif about traveling during a pandemic with a suppressed immune system and. I say no i am not planning on arrest. And i just try writing on now really just. Right. I caught me. Acting hans i mean. The 1st street goes without a hitch next is a commercial flight from london to does. So i had to have her. Throughout as a. Sort of wire from her true. They are very good enough to separate us. From more. Probable. In doha its on to flight number 3 headed for perth. On wrong. I think there are legitimate rates. But theres been another setback the flight to brisbane has been cancelled. Michael can only get home if he hires another private jets at a cost of 30000. 00. From a good. Bit of progress but. Just landed in talking. Sucking. Eat. Sleep must be an advantage of. Charming our. Hour of. A month after they were supposed to travel to russia i catch up with nic in the tyrion again if you like my fellow write me its Easter Sunday all the Greek Orthodox families who live around the and everyones trying to celebrate to get on well keeping distance so were going to attempt the traditional great dance by my side so one and i have made is apart from each album that i had heard that having. A. Surprisingly there was a Silver Lining to the pandemic for the de moss family talk run of ours will think its its forced us to actually see. Her down and just enjoy time with the kids the north family town so all in all freshly being good spring really good to slow down. To denounce. And i stress when im not working and. You dont have the everyday stresses of walk. With borders closed indefinitely it could be a long time before nic can travel to russia. Its a difficult one of the long. As much as its nice to slow down when you put it into perspective these things take some of the. Who knows whats going to happen with their finances and Everything Else and you end. This the most difficult compiling it and i want some murmurings. Perfect. Taria has heard about michaels ordeal getting back from russia. I look at that case though and i think hes so lucky hes so lucky that he got in he did the trade and hes got a very high chance of actually getting his life back now as painful as a was going through the journey and i wish i was in that case so we flew over to russia a way cool to beforehand i would happily go through that kind knowing that its actually going to stop my amisse. Than waiting around for another year old so not knowing whats murmurings. They wish that people like nick and michael could access stem cell transplants without taking unnecessary risks. Pay through a real option give people an option to actually get their lives back the reason q are at it and i wish one day there will be for him inspections the right now the best course of treatment i just say to you so try to release a pool if you give that option. Dont force us abroad. We are going home too but when modern mankind originate. Many moons ago mankind migrated from the majestic. To begin the journey of the modern human across the world and as the dust settles everyone is welcome back home to. Our pride your destination. Keeping law and order is a primary function of any state. In protecting the people became Police Brutality a domestic incident became a global lock. In a country torn apart by racial inequality. When americans find a leader to unite. All of the key issues of the us elections. On aljazeera frank assessments what are you saying. That 76 percent of the population. Being slipped this little and indepth analysis of the days global headlines inside story on aljazeera. A backtrack from the president stone or drop buter answer after suggesting people should vote twice in the u. S. Election. That i am how the markets and this is al jazeera live from doha also coming up 2 days after the president s visits a call for unity from democratic candidate joe biden whos in canada was sure to meet with the family of jacob blake a black man shot by police. A push

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