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World Retina Day: People living with retinal disorders among first groups to self-isolate during Covid-19
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People with retinal disorders among first groups to self-isolate during COVID-19
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New study highlights impact of inherited retinal diseases on United States and Canada
Insight could be utilized to address supports, care pathways and access to treatment
Newswise Rockville, Md. – Data being presented at the 2021 virtual meeting of the Association for Research in Vision and Ophthalmology (ARVO) highlights the significant impact of inherited retinal diseases (IRD) in the United States and Canada.
Continuing their 2019 cost-of-illness of IRD studies in the Republic of Ireland and the United Kingdom (IRD Counts), Retina International sought to expand on the limited data illustrating the impact of IRDs from a socio-economic perspective. Given their larger population, data from the U.S. and Canada was a natural next step. In addition to the familial burden exposed in the study, the team noted that current assessment models of therapies do not appropriately reflect how little people living with IRD interact with health systems compared to the total cost burden of