Families with SMA babies hope for miracle cure
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Parents of babies with Spinal Muscular Atrophy (SMA), a rare genetic disease, came together at an event organised by Bangalore Baptist Hospital in the city on Tuesday.
Raman Gowda and Beembai, parents of one-year-old Aadhya, said they are waiting for some miracle cure for their baby. Another family came down from Chennai to discuss their 3.5-year-old daughter Rudra’s daily progress with the doctor.
SMA is a disease caused by loss of nerve cells, which carry electrical signals from the brain to the muscles. The disease, as it progresses, makes it extremely difficult for the babies to carry out basic activities like sitting up, lifting their head, swallowing milk and even breathing.