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What To Do If Your Child Is Afraid Of The Doctor - KCH Psychologist Publishes New Guide
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Dying Patients With Rare Diseases Struggle to Get Experimental Therapies
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Dying patients struggle to get experimental therapies
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Jul 15, 2021
At 15, Autumn Fuernisen is dying. She was diagnosed at age 11 with a rare degenerative brain disorder that has no known cure or way to slow it down: juvenile-onset Huntington’s disease.
“There’s lots of things that she used to be able to do just fine,” said her mom, Londen Tabor, who lives with her daughter in Gillette, Wyoming. Autumn’s speech has become slurred and her cognitive skills slower. She needs help with many tasks, such as writing, showering and dressing, and while she can walk, her balance is off.
Autumn has been turned down for clinical trials because she is too young.
KCH Psychologist to Publish Book on Parents Guide to Medical Trauma
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