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Jenna, a patient at The Ottawa Hospital, recently told her story about how reading an academic research article changed her life. As a teenager, she had been diagnosed with a rare subtype of muscular dystrophy limb girdle muscular dystrophy which causes progressive muscle weakness. Her clinicians were never able to identify the specific genetic subtype of the disorder that she had, which left her with little information about how her disease.

Kelly cobeyMona nemerResearch instituteUniversity of ottawa heart instituteCentre for journalologyOttawa citizenOttawa hospitalChief science advisorOpen scienceOttawa heart instituteகெல்லி கோபிமோனா நேமேற்ஆராய்ச்சி நிறுவனம்பல்கலைக்கழகம் ஆஃப் ஆடவா இதயம் நிறுவனம்ஆடவா குடிமகன்ஆடவா மருத்துவமனை