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Many health researchers never publicly share their results. Many studies remain behind a paywall. This means the public, and even other researchers, don’t have…
Jenna, a patient at The Ottawa Hospital, recently told her story about how reading an academic research article changed her life. As a teenager, she had been diagnosed with a rare subtype of muscular dystrophy limb girdle muscular dystrophy which causes progressive muscle weakness. Her clinicians were never able to identify the specific genetic subtype of the disorder that she had, which left her with little information about how her disease.