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Rosie Aldridge’s son Alfie led a normal, healthy life until the age of eight. But now, at 11, he has developed ALD and sadly may not make it to adulthood. ALD is a build up on fatty acids in the brain. It destroys nerve cells which relay information, then shuts down the brain, the nervous system, as well as the organ and limb functions.
However, if Alfie had a simple heal prick test at just five days old, which is a standard procedure in the Netherlands and many states in the USA, a bone barrow transplant would have prevented this and Alfie would now be leading a full and healthy life.
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