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Melissa and Steven, and surviving brother Matthew, inherited the condition from their father, Errol.
SIMON O CONNOR/Stuff
Errol Barnes didn’t expect to pass his rare condition on when he had children with Suzy, but he did. Pictured with Steven and surviving son Matthew. Steven’s condition turned terminal in February last year when he was diagnosed with cancer in his bowel, liver and lymph nodes. “He kept his positive attitude right through to the last day,” Errol said. “And he was hoping, hoping for the best.” Steven is being remembered for his positive attitude, generosity and big smile, which his family say he kept through his whole battle.