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Howell sisters raising money for kids battling rare diseases

Get our free mobile app You may have seen or heard their story by now, but it s worth revisiting over and over again because their mission is that important and they are that inspiring. Allie and Jonna Crocker, of Howell, joined me in the newsroom discussing their Jersey Shore non-profit a couple years back to discuss their Fighting H.A.R.D. (Having A Rare Disease) non-profit foundation which helps other kids/teens like them who are battling rare diseases, an unknown and overlooked field in certain circles, but they are bringing the issues this community is battling to light.

OC Assemblyman s bill would help those with a rare disease

Disease) to help children with rare diseases and chronic illnesses at the Jersey Shore. The Fighting H.A.R.D. Foundation came to be after Allie (now 18-years old) became ill earlier in her youth with Crohn’s Disease, Juvenile Rheumatoid Arthritis and Anxiety. It was then that one of her doctors instructed her to find a foundation that could provide the all around support she needed. While there are some organizations who provide assistance to children with certain rare diseases, the Crocker s couldn t find one that supported all rare diseases. That s when The Fighting H.A.R.D. Foundation was born at a time when just Allie was sick but it would soon be something her younger sister Jonna (now 17-years old) needed just as much.

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