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PsychoGenics Chief Innovation Officer Honored for Scientific Excellence

Of Note: 20 August 2021

Senators Introduce Legislation to Help Diagnose Children with Rare Diseases

Tuberous Sclerosis Alliance Evolves to TSC Alliance and Unveils New Brand

'My Children Both Live With a Rare Disease'

My Children Both Live With a Rare Disease Phil Tallman On 5/7/21 at 6:03 AM EDT Head injuries are scary–especially when they happen to young children. So, in 2019, when my then three-year-old son Colton hit his head falling off a jungle gym and started throwing up, we were terrified. My wife Jackie and I immediately rushed him to our local emergency room to be evaluated. While Colton didn t have a concussion like we initially feared, but what we did learn that day has impacted our family more than we could have ever imagined. Colton s reaction to the impact and the vomiting meant medical staff at the emergency room wanted to run a CT scan to ensure he didn t have a skull fracture. He didn t, but they noticed other potential problems and sent the scans to a neurologist at Lurie Children s Hospital in Chicago. With no immediate treatment possible, we went home to allow Colton to rest. At that stage, we hardly had any information, so we were anxious all night.