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CDC Epilepsy Program Awards $17 5M in Federal Funds to the Epilepsy Foundation to Create and Sustain a Strong Public Health Infrastructure for Epilepsy

White Mountains Fest: Get outside, be well!

White Mountains Fest: Get outside, be well!
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The John E Fogarty Foundation Announces 2021 Grant Recipients - Providence Business News

The John E. Fogarty Foundation Announces 2021 Grant Recipients PROVIDENCE – The John E. Fogarty Foundation for Persons with Intellectual and Developmental Disabilities (I/DD) is pleased to award more than $175,000 in grants to 31 Rhode Island non-profit organizations, serving more than 10,000 individuals. The Foundation’s mission is to support agencies that provide services to improve and enhance the quality of life for people with intellectual and developmental disabilities within Rhode Island. 2021 Grant recipients include: Access Point RI, Access Speech, The Arc of Blackstone Valley, Autism Project, Bishop Hendricken Options Program, Camp Jori, Children’s Friend & Service, Common Fence Point Improvement Association, Epilepsy Foundation New England, Episcopal Conference Center, Festival Ballet Providence, The Fogarty Center, Gateways to Change, J. Arthur Trudeau Memorial Center, Looking Upwards, The Miracle Project – New England, Newport County YMCA, Olean Center, PLAN RI

Commentary: Don t put Maine s health care decisions in the hands of a third party

increase font size Commentary: Don’t put Maine’s health care decisions in the hands of a third party L.D. 675 could cost thousands of Maine patients and their families access to the medications that allow them to live fulfilling lives, says the mother of a chronically ill teen. By Kristine BinetteSpecial to the Press Herald Share My daughter, Delia, is one of the most wonderful people I know. She is kind, she is generous and she is resilient beyond belief. In her 13 years, she has seen more hospital rooms than I care to think about. You see, Delia was diagnosed with epilepsy at 4 weeks old. She’s also had cancer and lives daily with mitochondrial disease as well as several other chronic illnesses.

Families of high risk kids ask for vaccine inclusion

Families of high risk kids ask for vaccine inclusion © WMTW Vaccine Options High Risk Families of high-risk children are asking to be included in the first group in Maine to be vaccinated against COVID-19 A number of organizations representing families with autism, epilepsy and other conditions wrote a letter to Gov. Mills and other state officials. In the letter, these advocacy groups ask that they be included in Group 1A cause of the risk of infection from family members, and the poor outcomes for people with disabilities.Sign up for our Newsletters It s mostly because these conditions come with significant underlying conditions. I have a daughter with Down Syndrome, and she has a heart condition, so that heart condition is what puts her at risk, said Carrie Woodcock of the Maine Parent Federation.

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