14-month-old lottery winner with killer disease gets new life after expensive therapy in Bengaluru
14-month-old lottery winner with killer disease gets new life after expensive therapy in Bengaluru
A fourteen-month old, who was diagnosed with Spinal Muscular Atrophy or SMA, underwent a Rs 16 crore revolutionary gene therapy at a Bengaluru hospital after winning a lottery .
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The toddler was diagnosed with Spinal Muscular Atrophy or SMA. (Image for representation: Reuters)
Fourteen-month-old Fatima, who was afflicted with a killer muscular disorder, is now blessed with a new lease of life after she underwent a Rs 16 crore revolutionary gene therapy at a Bengaluru hospital after winning a lottery .
Families with SMA babies hope for miracle cure
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Parents of babies with Spinal Muscular Atrophy (SMA), a rare genetic disease, came together at an event organised by Bangalore Baptist Hospital in the city on Tuesday.
Raman Gowda and Beembai, parents of one-year-old Aadhya, said they are waiting for some miracle cure for their baby. Another family came down from Chennai to discuss their 3.5-year-old daughter Rudra’s daily progress with the doctor.
SMA is a disease caused by loss of nerve cells, which carry electrical signals from the brain to the muscles. The disease, as it progresses, makes it extremely difficult for the babies to carry out basic activities like sitting up, lifting their head, swallowing milk and even breathing.