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Race against time as infant battles rare disease and COVID-19

Race against time as infant battles rare disease and COVID-19 by 20210728 Rachael Seales comforts her two year old son Amari John at the Couva Hospital and Multi Training Facility as they both battle COVID-19. COURTESY RACHAEL SEALES Jesse Ramdeo As if bat­tling a rare ill­ness was not enough for two-year-old Amari John, the in­fant now has an­oth­er ob­sta­cle he must over­come, COVID-19. Last De­cem­ber, Guardian Me­dia cap­tured John as he danced and spun to his favourite song, all while his health hung in the bal­ance. Up un­til then, his par­ents Rachael Seales and Abiel John de­scribed their boy as noth­ing short of a mir­a­cle.

Infant, 2, needs life-saving surgery

Infant, 2, needs life-saving surgery by 20201210 Little Amari John sits between his parents Racheal Seales and Abiel John. Amari suffers from Wiskott Aldrich syndrome and needs life-saving surgery urgently. COURTESY RACHEAL SEALES Jesse Ramdeo Lit­tle Amari John’s ill­ness is so rare that he is be­lieved to be the on­ly pa­tient be­ing treat­ed for it in Trinidad and To­ba­go and prob­a­bly the en­tire Caribbean. He has had bouts of bleed­ing, re­cur­rent in­fec­tions and de­vel­oped skin con­di­tions, all be­fore his sec­ond birth­day.

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