It is such a painful condition those with EB often compare their skin to third-degree burns.
“It [feels] like boiling water, drop by drop falling on your skin. You can feel this pain no matter the time of day; you can see how you’re losing your skin,” Keykhosravi, 29, told Al Jazeera from his home in Sabzevar, northeastern Iran.
But thanks to imports of special bandages from a Swedish medical company, Molnlycke, his pain was relieved for a few years and his condition was easier to manage.
The product, called Mepilex absorbent foam dressing, could easily absorb fluid from the wound, allowing it to heal faster and making life more bearable, Keykhosravi said.