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Two-year-old Xu Haoyang (徐灝洋) has likely just months to live but the only medicine that can help his rare genetic condition is not found anywhere in China and closed borders due to the COVID-19 pandemic mean that he cannot travel for treatment.
Instead, his desperate father, Xu Wei (徐偉), has created a home laboratory to create a remedy for the boy himself.
“I didn’t really have time to think about whether to do it or not. It had to be done,” the 30-year-old said from his DIY lab in an apartment building in southwestern Kunming.
Haoyang has Menkes syndrome, a genetic disorder
Two-year-old Haoyang has likely just months to live but the only medicine that can help his rare genetic condition is not found anywhere in China and closed borders due to the Covid-19 pandemic mean he cannot travel for treatment.