YWN regrets to inform you of the Petirah of Rafi Strauss Z”L. He was approximately 40 years old, and one of the biggest Baalei Yesurim of our generation,
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she was an adorable baby. but at 6 months, she had freckles. we went back for the 9-month checkup, and that s when the doctor said there are more and they re darker. they were referred to a specialist. we were looking things up in books. they were calling people on the phone. and the longer we sat there, the more our hearts dropped. then finally a diagnosis. paris tested positive for xp. and that s the last thing i heard. xp is xeroderma pigmentosa. dr. barry cunningham has been treating the rare disorder for years says any one of us can get skin cancer. in fact, one in five of us will. but for paris, who had to wear this full bodysuit after she was diagnosed as a baby, the odds are much worse. she lacks the enzyme that repairs dna damage caused by sunlight every day. that means she s 20,000 times more likely to develop cancer when unprotected.
they were referred to a specialist. we were looking things up in books. they were calling people on the phone. and the longer we sat there, the more our hearts dropped. then finally a diagnosis. paris tested positive for xp. and that s the last thing i heard. xp is xeroderma pigmentosa. dr. barry cunningham has been treating the rare disorder for years sbas any one of us can get skin cancer. in fact, one in five of us will. but for paris, who had to wear this full bodysuit after she was diagnosed as a baby, the odds are much worse. she lacks the enzyme that repairs dna damage caused by sunlight every day. that means she s 20,000 times more likely to develop cancer when unprotected.