The hearing was held amid ongoing concerns from u. S. Lawmakers w. H. O. It was was impy influenced by china through the covid19 pandemic. This is about two and half hours. It was not. [background noises] these select a subcommittee of the coronavirus pandemic will come to order but want to welcome everyone here today. Without objection the chairman to clear recess at any time. I now recognize myself for the purpose of making an opening statement. Today the select subcommittee is holding a hearing to examine the future of the World Health Organization. And our relationship with the w. H. O. The World Health Organization is supposed to be the preeminent organization that governs just that, the worlds health. Played a key role in eradicating smallpox and is significantly reduced in the cases of polio around the globe. And yet when the world was faced with the outbreak of covid19 and the pandemic we saw w. H. O. Does not always serve all of its members equally. We saw its not an organizat
Two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. The room is packed with people, patients and caregivers that live in this reality every single day. Right here, 350 patient stories from 44 states. This is long overdue. People that watch their bodies deteriorate in real time. Family
Patients with Rare Diseases. Advocates for medical ethics and a therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing before the Senate Special Agent Committee is about two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. Th
Distinguished guests, the recipients of the National Medal of science. Distinguished guests, the recipients of the National Medal of technology and innovation. Distinguished guests, the president of the United States. President biden welcome, have a seat. This is a happy occasion. Thank you all for being here and welcome to the white house, your house. The 1921 visit the white house, the president warren, and presented him with a precious gift. One gram carefully stored and purchased with funds raised by thousands of american women to help continue research that would transform everything from xrays to Cancer Treatment to nuclear energy. 24 years after that visit, a girl born in syria. She dreamt of being madam curie, moving to paris and becoming a scientist and then a family with real wisdom told her that if you want to dream big, dream about going to america. Thats where great science happens. Were determined to return great science to america by investing 2 of our gdp in science and
For Peoples Health and peoples lives. So there has to be lives. So there has to be accountability. You know, we see in these situations, dont we, how theres a, you know, a big injustice uncovered like hillsborough or grenfell or the post office. And yet there isnt that individual accountability , that individual accountability, but that has to follow. And in my view, prosecutions should be considered in this case, including a corporate accountability. I believe there may well be a for case corporate manslaughter against whitehall departments as well. Departments as well. The parents of a baby girl say theyll never forgive the callousness of a nursery worker whos been convicted of manslaughter. 37 year old Kate Roughley placed nine month old Genevieve Meehan face down on a beanbag for an hour and a half while working at the tiny toes nursery in Cheadle Hulme in may 2022. Colleagues and paramedics tried to revive her, but she was declared dead later that day. Declared dead later that day