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Cork couple campaign to highlight rare diseases

Rare Diseases Ireland (RDI) estimates that 300,000 people in Ireland, or one in 17 people, are living with a rare disease, of which there are more .

Vicky mcgrathJulie sweeneyNational strategyRare diseases irelandGet rare awareGovernment buildingsDiseases irelandCork health

New staffing roles essential to bring Ireland s genetic services in line with international peers, campaigners warn Donegal Oireachtas members - Highland Radio

New staffing roles essential to bring Ireland s genetic services in line with international peers, campaigners warn Donegal Oireachtas members - Highland Radio
highlandradio.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from highlandradio.com Daily Mail and Mail on Sunday newspapers.

Rachel crowleySally ann lynchJames obyrneVicky mcgrathMater misericordiae university hospitalCo donegalProgramme for governmentDepartment of clinical geneticsConsultant endocrinologist at st vincent university hospitalNational strategyGenomic resource associateClinical geneticsRare diseases irelandDiseases irelandLeinster houseGet rare aware

Athlone campaigner calls for urgent action on rare diseases

Athlone campaigner calls for urgent action on rare diseases
westmeathindependent.ie - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from westmeathindependent.ie Daily Mail and Mail on Sunday newspapers.

Vicky mcgrathSally ann lynchLaura eganJames obyrneShane oneillRachel crowleyDepartment of clinical geneticsProgramme for governmentMater misericordiae university hospitalCo westmeathConsultant endocrinologist at st vincent university hospitalNational strategyRare diseases irelandGet rare awareLeinster houseRare ireland

Offaly campaigner calls for urgent action on rare diseases

Offaly campaigner calls for urgent action on rare diseases
offalyindependent.ie - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from offalyindependent.ie Daily Mail and Mail on Sunday newspapers.

Vicky mcgrathSally ann lynchJames obyrneRachel crowleyMary halpin byrneShane oneillMater misericordiae university hospitalConsultant endocrinologist at st vincent university hospitalCo offalyDepartment of clinical geneticsProgramme for governmentNational strategyRare diseases irelandGet rare awareLeinster houseAmyloidosis ireland

Cork mum: Telling me my son is a medical mystery is not good enough

A Cork mum opens up about the ‘lack of support’ in the diagnosis and treatment of her son’s rare condition, writes CHRIS DUNNE

Connor sweeneyVicky mcgrathAnn lawlorPatricia toweyShane oneillNancy oneillHuntington disease association of irelandProgramme for governmentAware campaignBallyhass national schoolFirst holy communionCystic fibrosisJunior infantsSenior infantsGet rare awareRare diseases ireland