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La Jolla to be starting point for fundraising cross-country bike ride against Usher syndrome

Tim Schroeder of the Netherlands plans to ride to Florida in honor of his 7-year-old daughter, who has the rare inherited condition that impacts vision, hearing and balance.

Emmy Award-Winning NBC News Journalist Peter Alexander to Host National Organization for Rare Disorders (NORD) 40th Anniversary Celebration and 2023 Rare Impact Awards

Emmy Award-Winning NBC News Journalist Peter Alexander to Host National Organization for Rare Disorders (NORD) 40th Anniversary Celebration and 2023 Rare Impact Awards
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