The Rare Disease Ghana Initiative (RDGI), a Non-Governmental Organisation, has launched the Ghana Rare Disease Family Network with a call on policymakers to prioritise healthcare support for people living with those diseases. Rare diseases include genetic and metabolic disorders, with the treatment involving novel medications, and therapies, which vary widely…
The Rare Disease Ghana Initiative has officially launched its Ghana Rare Disease Family Network (GRDFN) with a call on families to have a bigger voice for support within the health delivery system. Mr Samuel Agyei Wiafe, a Clinical Psychologist and the Executive Director of the Rare Disease Ghana Initiative (RDGI)…