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RARE-X Appoints Charlene Son Rigby as Chief Executive Officer
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Patient Groups Begin Using RARE-X s Transformative Data Collection Platform
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IndoUSrare and RARE-X Conduct Feasibility Study For A Patient-Owned Health Data Collection Program for India
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RARE-X Announces Patient Community Data Collection, Sharing, and Platform Enhancements
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Further development of data standards and governance, as well as additional case testing, is made possible through support from Travere Therapeutics
“We are excited to support RARE-X, who shares our goal of elevating science and service for people living with rare disease,” said Bill Rote, Ph.D., senior vice president of research and development at Travere Therapeutics. ALISO VIEJO, Calif. (PRWEB) February 23, 2021 RARE-X today announced plans to expand its work helping patient groups collect structured, standardized research-ready data that will better support the development of future treatments. This foundational work is made possible through a funding commitment from Travere Therapeutics, a biopharmaceutical company dedicated to identifying, developing and delivering life-changing therapies to people livi
RARE-X Announces the Expansion of its Board of Directors to Support the Organization’s Growth and Launch Efforts
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New members will enhance RARE-X’s programs, pilots, and operational expansion with strategic expertise and leadership
“The additions of Cynthia Grossman, PhD, Jason Colquitt, and Simon Frost to the board are very strategic. All bring a depth of knowledge in patient advocacy, health tech, scaling-up organizations, and operational excellence,” said Nicole Boice, RARE-X Co-Founder/Executive Director. ALISO VIEJO, Calif. (PRWEB) February 10, 2021
RARE-X today announced three new board members who will help support the nonprofit’s work in structured patient data collection, responsible data sharing, and the promise of its Federated Data Sharing Platform for data sharing and analysis. The new board members are Cynthia Grossman, PhD, director at Biogen; Jason Colquitt, CEO of Across