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They created a drug for Susannah What about millions of others?

Susannah Rosen, 8, spent much of her childhood in hospitals in New York City as doctors documented the gradual loss of her ability to stand, walk and see.

New yorkUnited statesUnited kingdomColumbia universityLa jollaDavid coreyStanley crookeJulia vitarelloTimothy yuJennifer bainRosanne crookeSusannah rosenWendy chungJeff miltonSally jacksonMila makovec

KY: Magical Farewell Planned To Honor Owensboro s KingNazir

The community of Owensboro, Kentucky are invited to celebrate the precious life of KingNazir Gates as he takes his final horse and carriage ride.

United statesKing nazirTimothy yuLou gerhigNational institutional of healthChildren matter incKingnazir gatesNazir gatesLakeia nardCarl gatesMuhan nardNational institutionalRare disease dayOwensboro x2013 daviess county newsWhat x27s new

They Created a Drug for Susannah What About Millions of Other Patients?

Scientists have made rapid progress in customizing drugs for ultrarare diseases. The hard part now is making such treatments on a large scale.

New yorkUnited statesColumbia universityUnited kingdomDavid coreyStanley crookeJulia vitarelloTimothy yuJennifer bainRosanne crookeSusannah rosenWendy chungJeff miltonSally jacksonMila makovecIssi rozen

A Setback for N-of-1 Therapies Is a Reminder of the Need to Share Data

A Setback for N-of-1 Therapies Is a Reminder of the Need to Share Data
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

United statesNew yorkValeria schenkelTimothy yuNew york timesAmerican neurological associationBoston childrenCheck hayden

Gene Treatment for Rare Epilepsy Causes Brain Side Effect in 2 Children

The side effect, a buildup of fluid in the brain, led to the death of one of the children and presents a grave setback for a class of personalized medicine.

United statesUniversity of massachusettsSeth greenblottTimothy yuAlexandra schenkelValeria schenkelLiza marie johnsonMila makovecLucy greenblottArthur kriegJude children research hospitalDrug administrationValeria associationTherapeutics instituteAmerican neurological associationBoston children