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Burnsville family raises awareness for rare disease

Monday marks Rare Disease Day, and one Burnsville family is highlighting the impact one uncommon disease has had on their lives – Rett Syndrome.

United statesMary kallstromTim feymaLindsey kallstromInternational rett syndrome foundationRett centerRare disease dayRett syndromeGillette childrenInternational rett syndromeWalkn rollPediatric neurologistDakota countyHealth care

Minnesota parents talk death, life with rare form of epilepsy

Dravet syndrome symptoms start between 1-18 months, and are accompanied by frequent seizures. Kids can seize for minutes to hours, which can require hospitalization or sedation to stop it.

United statesDawna raeTim feymaDawna martineauKeri ericksonMadolynn ericksonCindy gordonLaura macarthur elementary school in duluthDravet syndrome foundationDravet syndromeGillette childrenSpecialty healthcareLaura macarthur elementary schoolHot wheelsSocial security compassionate care list

Minnesota parents talk death, life with rare form of epilepsy

Dravet syndrome symptoms start between 1-18 months, and are accompanied by frequent seizures. Kids can seize for minutes to hours, which can require hospitalization or sedation to stop it.

United statesDawna raeTim feymaDawna martineauKeri ericksonMadolynn ericksonCindy gordonLaura macarthur elementary school in duluthDravet syndrome foundationDravet syndromeGillette childrenSpecialty healthcareLaura macarthur elementary schoolHot wheelsSocial security compassionate care list

Minnesota parents talk death, life with rare form of epilepsy

Dravet syndrome symptoms start between 1-18 months, and are accompanied by frequent seizures. Kids can seize for minutes to hours, which can require hospitalization or sedation to stop it.

United statesDawna raeTim feymaDawna martineauKeri ericksonMadolynn ericksonCindy gordonLaura macarthur elementary school in duluthDravet syndrome foundationDravet syndromeGillette childrenSpecialty healthcareLaura macarthur elementary schoolHot wheelsSocial security compassionate care list

Minnesota parents talk death, life with rare form of epilepsy

Dravet syndrome symptoms start between 1-18 months, and are accompanied by frequent seizures. Kids can seize for minutes to hours, which can require hospitalization or sedation to stop it.

United statesDawna raeTim feymaDawna martineauKeri ericksonMadolynn ericksonCindy gordonLaura macarthur elementary school in duluthDravet syndrome foundationDravet syndromeGillette childrenSpecialty healthcareLaura macarthur elementary schoolHot wheelsSocial security compassionate care list

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