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Dunblane teenager gives Holyrood speech on life with rare genetic condition

Dunblane teenager gives Holyrood speech on life with rare genetic condition
dailyrecord.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from dailyrecord.co.uk Daily Mail and Mail on Sunday newspapers.

The mental toll of living with a rare disease

Angelina is a fierce eight-year-old. But beneath her radiant smile and infectious laughter lurks a young girl fighting a daily battle. Angelina struggles to walk, talk, eat, and control her emotions. She can't sleep because her brain won't let her rest.

Disabled woman, 19, told she isn t allowed in pub without a parent

Kayce Jackson has SWAN (Syndromes Without a Name), and left the Crown and Cushion pub in tears earlier this month.

The ultra-rapid genetic tests giving parents a diagnosis for children s mystery conditions

Australian researchers have been combing through 3 billion letters of genetic code to find single spelling mistakes that are causing mystery conditions.

The woman with an illness so rare it does not have a name

Debbie Schwartz, 47, from Cardiff, spent her childhood visiting doctors. She is now one of the first patients at Britain s first commissioned clinic for people suffering with syndromes without a name

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