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Former Derry GAA star running 10k every day in May for rare condition affecting son

Former Derry GAA star Liam Hinphey is taking part in a challenge this month to run 10k every day to raise funds and awareness for a life-limiting form of epilepsy that affects his son.

United kingdomGalia wilsonTrustees at dravet syndrome united kingdomDravet syndrome united kingdomDravet syndromeSudden unexpected deathWee liamSyndrome united kingdom

Dravet Syndrome: Former Derry GAA dual star running 10k every day in May for rare condition affecting son

Former Derry GAA star Liam Hinphey is taking part in a challenge this month to run 10k every day, to raise funds and awareness for a life-limiting form of epilepsy that affects his son.

United kingdomGalia wilsonTrustees at dravet syndrome united kingdomDravet syndrome united kingdomDravet syndromeSudden unexpected deathWee liamSyndrome united kingdom

Aunt gets Oxfordshire school moving for Dravet Syndrome

Aunt gets Oxfordshire school moving for Dravet Syndrome
oxfordmail.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from oxfordmail.co.uk Daily Mail and Mail on Sunday newspapers.

Chipping nortonUnited kingdomCity ofGalia wilsonGreat tew primary schoolPupils at great tew primary schoolDravet syndrome united kingdomSyndrome united kingdomDravet syndrome united

Who s Moving: National AIDS Trust, Sue Ryder, Felix Project and more

Who s Moving: National AIDS Trust, Sue Ryder, Felix Project and more
civilsociety.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from civilsociety.co.uk Daily Mail and Mail on Sunday newspapers.

United kingdomCity ofJohn mcintoshHeidi travisSonali siriwardenaTania lewisJames sandersonLouisa mitchellGirish menonJenny willmottCatherine woodheadMagdalene bayim adomakoHazel blearsJulie davisPaul drechslerJulia neuberger

LifeArc launches £40M research centres that will unlock new tests, treatments and cures for people living with rare diseases

LifeArc launches £40M research centres that will unlock new tests, treatments and cures for people living with rare diseases Thousands of people living with rare medical conditions will get access to improved tests, treatments and potentially cures, thanks to the creation of four new LifeArc Translational.

United kingdomCity ofPatrick chinneryKathryn crokerAdam harrawayKerry leeson beeversPhilippa thomasDavid jonesLiz curtisCatriona crombieQueens university belfastKidney research united kingdomProfessor of healthcare technologyLifearc gene therapy innovation fundUniversity of edinburghUniversity college london