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Announcing the 4th Annual Virtual Plunge for Elodie, Raising Critical Funds for Epidermolysis Bullosa (EB) Research A Small Hometown Fundraiser Evolves Into a Global Movement for this Devastating Rare Disease News provided by Share this article NEW YORK, March 9, 2021 /PRNewswire/   EB Research Partnership (EBRP) announces the 4th annual Plunge For Elodie, an event where participants plunge into freezing waters to fundraise for research aimed at discovering therapies for Epidermolysis Bullosa (EB), a rare and life-threatening genetic skin disorder. For the first time, the Plunge for Elodie is a virtual event, encouraging global engagement as participants are asked to plunge from their respective locations and share videos to social media by March 28, 2021. More information on how to donate and get involved can be found at

United statesEd vedder pearlElodie kubikStephanie ishooKristan fletcher khtikianKatie ramseyJessica bielMichael hundBoston trans national groupEb research partnershipMelodie coSource eb research partnershipPlunge for elodieEpidermolysis bullosaSophia grace ramseyTrans national group