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Life with SMA: Patient, advocates weigh in on rare genetic disorder

At the age of 23, Chloe Caldwell is learning to drive.

United statesEric holcombLas vegasEchloe caldwellCenters for diseaseMuscular dystrophy family foundationSpinal muscular atrophyDisease controlCaleb bunchIvy techMuscular dystrophy familyVocational rehabilitationIndiana house bill

Help us save our babies: Newborn twins fighting rare genetic disease that family says will cost $4million to treat

Baby Eli and Easton Reed were born on Easter Sunday and were diagnosed days later with Spinal Muscular Atrophy, which was discovered after doctors conducted routine testing.

Eli austinEaston michaelEaston reedMike pooreKecia van hoftAustin reedMosaic health care trusteesKansas cityEaster sundaySpinal muscular atrophySpinal muscularMosiac life careExecutive officer mike pooreHealth care trustees

Insurance Denies Newborn Twins Life-Saving Treatment for Fatal Genetic Disorder: Hard to Cope

An insurance company has denied newborn twins a one-time genetic treatment that could cure their spinal muscular atrophy — otherwise they are likely to die before their second birthday

Amanda reedNational institute for neurological disordersNational library of medicineAustin reedEaston reedSpinal muscularNational instituteNeurological disordersBaby girlRare disease needs life saving medicineNational libraryCleveland clinicSpinal muscular atrophyNewborn twinsGenetic disorderInsurance company

Life with SMA: Patient, advocates weigh in on rare genetic disorder

At the age of 23, Chloe Caldwell is learning to drive.

United statesEric holcombEchloe caldwellLas vegasMuscular dystrophy family foundationCenters for diseaseSpinal muscular atrophyDisease controlCaleb bunchIvy techMuscular dystrophy familyVocational rehabilitationKenneth hobbyIndiana house billMotor vehiclesHe economy

Newborn twins fight rare genetic disease, family says it ll costs millions of dollars to save their lives

Newborn twins fight rare genetic disease, family says it ll costs millions of dollars to save their lives
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United statesMike pooreAmanda reedMosaic health care trusteesAustin reedSpinal muscular atrophyMosaic life careChief executive officer mike pooreHealth care trustees

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