A Kansas man with a rare disorder spent decades advocating for gene therapy It may never help him kmuw.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from kmuw.org Daily Mail and Mail on Sunday newspapers.
Right now, there is no cure for amyotrophic lateral sclerosis (ALS) and approved therapies only moderately slow progression of the disease. .
Donavon Decker became, in more ways than one, an ambassador of limb girdle muscular dystrophy type 2D, a degenerative disorder. But decades after he participated in patient trials and fundraised for research, drug companies are still nowhere close to a cure.
/PRNewswire/ On May 12, the US Food and Drug Administration (FDA) granted approval to oral edaravone (RADICAVA ORS) for the treatment of amyotrophic lateral.
/PRNewswire/ On May 12, the US Food and Drug Administration (FDA) granted approval to oral edaravone (RADICAVA ORS) for the treatment of amyotrophic lateral.